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支持自闭症谱系障碍儿童的家庭:家长提出的问题以及护士需要了解的内容。

Supporting families of children with autism spectrum disorders: questions parents ask and what nurses need to know.

作者信息

Elder Jennifer Harrison, D'Alessandro Tina

机构信息

Department of Health Care Environment and Systems College of Nursing, University of Florida, Gainesville, FL, USA.

出版信息

Pediatr Nurs. 2009 Jul-Aug;35(4):240-5, 253.

Abstract

Autism spectrum disorder is a lifelong condition that currently has an unclear etiology and no known cure. Families of children on the autism spectrum typically have many questions and much to learn as they manage the disorder and create meaningful lives for their children and themselves. Helping families understand both features of autism and the diagnostic process is key to supporting family acceptance of the diagnosis. Nurses can also assist families in navigating the common process of grief and adjustment following diagnosis. As the diagnosis becomes real, many questions about medications and other treatments can be addressed by knowledgeable nurses. Additionally, nurses can support families in the critical areas of managing family life, addressing sibling needs, and planning for the future. Parent-to-parent advice from the mother of a child with autism supplements this article.

摘要

自闭症谱系障碍是一种终身疾病,目前病因不明,也没有已知的治愈方法。自闭症谱系儿童的家庭在应对这种疾病并为孩子和自己创造有意义的生活时,通常会有很多问题,需要学习很多东西。帮助家庭了解自闭症的特征和诊断过程是支持家庭接受诊断的关键。护士还可以协助家庭应对诊断后的常见悲伤和调整过程。随着诊断成为现实,许多关于药物和其他治疗的问题可以由知识渊博的护士解答。此外,护士可以在管理家庭生活、满足兄弟姐妹需求和规划未来等关键领域为家庭提供支持。一位自闭症患儿母亲提供的家长对家长的建议补充了本文内容。

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