Parents of children with special health care needs are often required to assume responsibility for the complex care of their children. It is important for pediatric nurses to remember these parents are, first and foremost, the child's parents and primarily responsible for loving their child, providing a safe and secure home, and fostering their child's development as a person. Pediatric nurses should support the parents in the medical/nursing care of their child in whatever way possible so the parents have more time to parent. This account from a mother of a child with developmental delay helps remind us of our need to help support parents in being "parents first."
有特殊医疗需求孩子的家长常常需要承担起对孩子复杂的护理责任。儿科护士必须牢记,这些家长首先是孩子的父母,主要负责关爱自己的孩子,提供一个安全可靠的家,并促进孩子作为一个人的成长。儿科护士应尽可能地在孩子的医疗护理方面支持家长,以便家长有更多时间履行父母的职责。一位发育迟缓孩子母亲的讲述有助于提醒我们,需要帮助支持家长“首先做好父母”。