Hinden Betsy, Wolf Toni, Biebel Kathleen, Nicholson Joanne
University of Massachusetts Medical School, MA, USA.
Psychiatr Rehabil J. 2009 Fall;33(2):98-105. doi: 10.2975/33.2.2009.98.105.
Given that the majority of adults with mental illness are parents, it is likely that a substantial number of members in the Clubhouse community are parents. Supporting members in their role as parents presents meaningful, philosophical and practical challenges for both individual Clubhouses and the Clubhouse movement. Supporting parents within the Clubhouse, however, is a necessary and logical step, consistent with the Clubhouse emphasis on rehabilitation and recovery. The current study explored the conditions necessary for supporting members in the parenting role in an existing Clubhouse.
A grounded-theory, ethnographic approach was used to collect data from multiple stakeholders including Clubhouse members, staff, and Board of Directors. A total of nine focus groups with 30 participants were conducted.
Five themes emerged reflecting the conditions necessary to support parents in the Clubhouse: 1) securing stakeholder buy-in; 2) identification of shared values and principles; 3) clarification about how supporting parents will affect current Clubhouse activities; 4) facilitation of ongoing communication about changes; and 5) exploration of opportunities to maximize resources to support all Clubhouse members.
Findings confirm the philosophical desirability and practical feasibility of supporting members in the parenting role, and identify fundamental challenges to philosophy and practice raised by the paradigm shift from thinking about individuals to thinking about families.
鉴于大多数患有精神疾病的成年人是父母,俱乐部社区中很可能有相当数量的成员是父母。在父母角色方面支持成员,对各个俱乐部会所及俱乐部会所运动而言,都存在着有意义、理念性及实践性的挑战。然而,在俱乐部会所内支持父母是必要且符合逻辑的一步,这与俱乐部会所对康复及恢复的重视相一致。本研究探讨了在现有俱乐部会所中支持成员扮演父母角色所需的条件。
采用扎根理论的人种志方法,从包括俱乐部会所成员、工作人员及董事会在内的多个利益相关者处收集数据。共进行了9个焦点小组讨论,有30名参与者。
出现了五个主题,反映了在俱乐部会所中支持父母所需的条件:1)确保利益相关者的认同;2)确定共同的价值观和原则;3)阐明支持父母将如何影响当前俱乐部会所的活动;4)促进关于变化的持续沟通;5)探索最大化资源以支持所有俱乐部会所成员的机会。
研究结果证实了在父母角色方面支持成员在理念上的可取性及实践上的可行性,并指出了从关注个体转向关注家庭的范式转变给理念和实践带来的根本挑战。