Neurology, Public Health and Disability Unit-Neurological Institute C. Besta IRCCS Foundation, Milan, Italy.
Disabil Rehabil. 2009;31(24):2041-6. doi: 10.3109/09638280902893634.
To describe functioning and health of patients with myasthenia gravis (MG) and to identify which are the most common problems patients encounter, by using the international classification of functioning, disability and health (ICF).
Adult patients with MG were recruited at C. Besta Neurological Institute. The ICF checklist was administered in individual sessions. Categories were identified as relevant if they were reported as a problem by more than 30% of patients (within activities and participation, the threshold was counted on capacity qualifier).
One hundred two patients were enrolled (mean age 47.2; inpatients were 29.4%, females 68.6%) and 54 ICF categories were selected: 14 body functions categories (26% out of total selected categories), 2 body structures (4%), 22 activities and participation categories (41%) and 16 environmental factors (29%). Environmental factors were essentially reported as facilitators.
Twelve ICF categories, not contained in ICF core-sets for neurological condition, related to mobility, household and labour activities were identified. The ICF categories identified in this study are an useful guideline for clinicians and researchers, for monitoring interventions and follow-up of clinical conditions on a broad set of functional areas, and for developing ICF-based assessment tools for patients with MG.
使用国际功能、残疾和健康分类（ICF）描述重症肌无力（MG）患者的功能和健康状况，并确定患者最常遇到的问题。
在 C. Besta 神经学研究所招募成年 MG 患者。在个人会议中使用 ICF 检查表。如果超过 30%的患者（在活动和参与方面，计数基于能力限定词）报告存在问题，则将类别确定为相关类别。
共纳入 102 名患者（平均年龄 47.2；住院患者占 29.4%，女性占 68.6%），选择了 54 个 ICF 类别：14 个身体功能类别（占所选类别的 26%），2 个身体结构（4%），22 个活动和参与类别（41%）和 16 个环境因素（29%）。环境因素主要被报告为促进因素。
确定了 12 个与移动性、家庭和劳动活动相关的 ICF 类别，这些类别未包含在神经状况的 ICF 核心集中。本研究中确定的 ICF 类别为临床医生和研究人员提供了有用的指导，可用于监测广泛功能领域的干预措施和临床状况的随访，并为 MG 患者开发基于 ICF 的评估工具。
