Department of Nursing Science, School of Health Sciences, Jönköping University, PO Box 1026, S-551, 11 Jönköping, Sweden.
Cancer Nurs. 2010 Jan-Feb;33(1):E18-24. doi: 10.1097/NCC.0b013e3181b6365a.
Knowledge about how young adults experience being a childhood cancer survivor is limited, as most previous research concerning the quality of life in survivors of childhood cancer has been conducted using standardized questionnaires. The aim of the current study was to identify and describe young adults' own experiences of long-term effects of cancer treatment on their self-image, relationships, and present life related to the impact of being a survivor of childhood cancer. Interviews were held with 7 young adults, 20 to 23 years of age. The verbatim-transcribed interviews were analyzed using constant comparative analysis. The core category was identified as "compensated life picture." All the negative and difficult experiences are compensated for with a positive view on and positive expectations regarding life. This core category was grounded in 5 categories: living a normal life, bodily changes, relationships with and support from others nearby, sentient life, and personal growth. The findings in this study illustrate the importance for healthcare staff to be aware of young adult survivors' experiences of their childhood cancer and its long-term effects. Extra attention and support from the healthcare system after the concluded treatment period are needed via a support program or support group for young adults.
关于年轻人作为儿童癌症幸存者的体验的知识有限，因为大多数关于儿童癌症幸存者生活质量的先前研究都是使用标准化问卷进行的。本研究的目的是确定和描述年轻人自己对癌症治疗的长期影响的体验，这些影响涉及自我形象、人际关系和当前生活，与作为儿童癌症幸存者的影响有关。对 7 名年龄在 20 至 23 岁的年轻人进行了访谈。对逐字转录的访谈进行了恒定比较分析。核心类别被确定为“补偿的生活图景”。所有负面和困难的经历都被积极的人生观和对生活的积极期望所补偿。这个核心类别包含 5 个类别：过正常生活、身体变化、与身边的人和支持的关系、有感知的生活和个人成长。本研究的结果表明，医护人员需要意识到年轻的癌症幸存者对其儿童癌症及其长期影响的体验。在结束治疗后，需要通过支持计划或支持小组为年轻人提供额外的医疗保健系统的关注和支持。
