U.S. Department of Veterans Affairs, Center for Management of Complex Chronic Care, 5000 S. 5th Ave. (151H), Bldg 1, Hines, IL 60141, USA.
Intellect Dev Disabil. 2009 Oct;47(5):337-47. doi: 10.1352/1934-9556-47.5.337.
This study explored aging and health experiences and concerns of women with intellectual and developmental disabilities, using a participatory approach that captured the direct reports of the women, in their own words and from their own perspectives. The results of a qualitative analysis of 6 focus groups, composed of 34 women with intellectual and developmental disabilities, Age 30 years and older are reported. The focus groups addressed health knowledge, body awareness,developmental and age-related changes, life satisfaction, health behaviors, health service experiences, and perceptions of disability. Findings indicated that the women held misconceptions and limited knowledge regarding health and aging. The results are discussed in relation to disability, women's health, and social support issues, including recommendations for health professionals and care providers.
本研究采用参与式方法，以女性自身的语言和视角，直接报告了 30 岁及以上智力和发育障碍女性的衰老和健康体验及关注点。研究报告了对 6 个焦点小组的定性分析结果，这些焦点小组由 34 名智力和发育障碍女性组成。这些焦点小组讨论了健康知识、身体意识、发育和年龄相关变化、生活满意度、健康行为、健康服务体验以及对残疾的看法。研究结果表明，这些女性对健康和衰老存在误解和有限的认识。研究结果与残疾、女性健康和社会支持问题有关，包括对健康专业人员和护理人员的建议。
