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重症肌无力患者的社会支持和自我效能:通向积极健康结果的共同途径。

Social support and self-efficacy in patients with Myasthenia Gravis: a common pathway towards positive health outcomes.

机构信息

Neurology, Public Health and Disability Unit, Scientific Directorate, Neurological Institute C. Besta, IRCCS Foundation, Via Celoria 11, 20133 Milan, Italy.

出版信息

Neurol Sci. 2010 Apr;31(2):231-5. doi: 10.1007/s10072-009-0194-8.

DOI:10.1007/s10072-009-0194-8
PMID:19936879
Abstract

Social support and self-efficacy, that was defined as one's belief in one's capabilities to enact a certain behaviour, have a mediating effect on health outcomes and, by facilitating healthy behaviours and compliance to treatment, reduce morbidity and mortality. This pilot study aims to test whether social support and self-efficacy have a positive effect in improving health outcomes of patients with Myasthenia Gravis. 74 patients (mean age 48.1; 67.6% female) were enrolled and reported low self-efficacy and health status, but good perceived social support. Men reported better self-efficacy than women, and those living with a partner reported higher social support levels. No differences were found stratifying for disease onset, disease stage and patients' working situation. Self-efficacy and tangible support were independent predictors of mental health status. These results provide a preliminary indication that psychosocial interventions aimed to increase self-efficacy could positively mediate mental health status in myasthenic patients, especially among women.

摘要

社会支持和自我效能感,即一个人对自己实施特定行为能力的信念,对健康结果具有中介作用,并通过促进健康行为和治疗依从性,降低发病率和死亡率。这项初步研究旨在测试社会支持和自我效能感是否对改善重症肌无力患者的健康结果有积极影响。74 名患者(平均年龄 48.1 岁;67.6%为女性)入组,报告自我效能感和健康状况较低,但感知到的社会支持较好。男性报告的自我效能感优于女性,与伴侣一起生活的患者报告的社会支持水平更高。按疾病发作、疾病阶段和患者工作情况分层,未发现差异。自我效能感和有形支持是心理健康状况的独立预测因素。这些结果初步表明,旨在提高自我效能感的心理社会干预措施可能会积极影响肌无力患者的心理健康状况,尤其是女性患者。

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