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本文引用的文献

1
Quality of life in patients with MuSK positive myasthenia gravis.肌肉特异性激酶(MuSK)阳性重症肌无力患者的生活质量
Acta Neurol Belg. 2018 Sep;118(3):423-427. doi: 10.1007/s13760-018-0915-y. Epub 2018 Mar 28.
2
Physician- and self-assessed myasthenia gravis activities of daily living score.医生和自我评估的重症肌无力日常生活活动评分。
Muscle Nerve. 2018 Mar;57(3):419-422. doi: 10.1002/mus.25764. Epub 2017 Nov 16.
3
Do Psychosocial Interventions Improve Quality of Life and Wellbeing in Adults with Neuromuscular Disorders? A Systematic Review and Narrative Synthesis.心理社会干预能否提高神经肌肉疾病成人的生活质量和幸福感?系统评价和叙述性综合。
J Neuromuscul Dis. 2016 Aug 30;3(3):347-362. doi: 10.3233/JND-160155.
4
Fatigue in myasthenia gravis: risk factors and impact on quality of life.重症肌无力中的疲劳:危险因素及其对生活质量的影响。
Brain Behav. 2016 Aug 2;6(10):e00538. doi: 10.1002/brb3.538. eCollection 2016 Oct.
5
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Can J Neurosci Nurs. 2016;38(1):56-64.
6
International consensus guidance for management of myasthenia gravis: Executive summary.重症肌无力管理的国际共识指南:执行摘要。
Neurology. 2016 Jul 26;87(4):419-25. doi: 10.1212/WNL.0000000000002790. Epub 2016 Jun 29.
7
Major motor-functional determinants associated with poor self-reported health-related quality of life in myasthenia gravis patients.与重症肌无力患者自我报告的健康相关生活质量差相关的主要运动功能决定因素。
Neurol Sci. 2016 May;37(5):717-23. doi: 10.1007/s10072-016-2556-3. Epub 2016 Apr 1.
8
The effects on caregivers of cancer patients' needs and family hardiness.癌症患者需求及家庭坚韧性对照料者的影响。
Psychooncology. 2016 Jan;25(1):84-90. doi: 10.1002/pon.3878. Epub 2015 Jun 17.
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Avoidance of cancer communication, perceived social support, and anxiety and depression among patients with cancer.癌症患者对癌症相关沟通的回避、感知到的社会支持以及焦虑和抑郁
Psychooncology. 2016 Nov;25(11):1301-1307. doi: 10.1002/pon.4060. Epub 2016 Jan 11.
10
An up-date on health-related quality of life in myasthenia gravis -results from population based cohorts.重症肌无力患者健康相关生活质量的最新情况——基于人群队列的研究结果
Health Qual Life Outcomes. 2015 Aug 1;13:115. doi: 10.1186/s12955-015-0298-1.

与重症肌无力患者生活质量相关的因素。

Factors associated with quality of life of people with Myasthenia Gravis.

机构信息

Department of Psychology, University of Utah Asia Campus, Yeonsu-gu, Incheon, South Korea.

Department of Neurology, Samsung Medical Center, Sungkyunkwan University College of Medicine, Kangnam-gu, Seoul, South Korea.

出版信息

PLoS One. 2018 Nov 8;13(11):e0206754. doi: 10.1371/journal.pone.0206754. eCollection 2018.

DOI:10.1371/journal.pone.0206754
PMID:30408057
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6226107/
Abstract

PURPOSE

As most of patients with Myasthenia Gravis have limitations in their physical functioning, many experience changes in psychological states and often have depression. The objective of the current study was to examine the roles of communication with medical professionals, patients' loneliness, and patients' depression, in relation to their effects on the patients' quality of life.

METHODS

For 120 patients with MG of 18 years and older, demographic variables, along with communication with medical professionals, loneliness, depression, and quality of life were measured.

RESULTS

As a result, people suffering from MG experienced lower quality of life when their career has changed due to the illness. At the same time, depression was a significant predictor of their quality of life, both in physical and mental domains.

CONCLUSIONS

The implications for clinical settings and the suggestions for future research are discussed.

摘要

目的

由于大多数重症肌无力患者的身体机能受限,许多人经历心理状态的变化,并且经常患有抑郁症。本研究的目的是研究与医疗专业人员的沟通、患者的孤独感以及患者的抑郁与他们的生活质量之间的关系。

方法

对 120 名 18 岁及以上的重症肌无力患者进行了人口统计学变量、与医疗专业人员的沟通、孤独感、抑郁和生活质量的测量。

结果

结果表明,由于疾病导致职业改变,患有 MG 的人生活质量较低。同时,抑郁是身体和心理领域生活质量的一个重要预测因素。

结论

讨论了对临床环境的影响和对未来研究的建议。