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基于 ICF 的皮埃蒙特大区神经精神科社区服务中受照顾学童的功能状况:改善照顾和规划的证据。

The ICF-based functioning profiles of school children in care with the neuropsychiatric community services in the Piedmont region: evidences for better caring and programming.

机构信息

Piedmont Region, Local Health Agency ASL BI, Biella, Italy.

出版信息

Disabil Rehabil. 2009;31 Suppl 1:S61-6. doi: 10.3109/09638280903317922.

DOI:10.3109/09638280903317922
PMID:19968537
Abstract

PURPOSE

In the Piedmont region, as in the rest of Italy, school integration of 'handicapped students' in regular classes, independently of the pathologies they are suffering from, involves almost the totality of students between the age of 3 and 14 and the majority of students between the age of 14 and 18. The responsibility to 'recognise the student as a handicapped person' is attributed to the regional public health system (Child Neuro-Psychiatry Services - CNPS). The information about the students is registered in the regional NPI.net, a Web-based application. The question was if ICF could help to develop a monitoring system about school inclusion processes better than the existing one. In fact, because all information is based on medical diagnosis embedded in narrative descriptions, it is often difficult to obtain reliable and comparable data on the disability profiles and the quality of children and adolescents school experience.

METHODS

Six CNPS, covering 50% of the Piedmont region, started a pilot study on disabled children at school. Diagnostic data of the children and a brief description of their functioning profiles using ICF were considered. Approximately 1000 school children and adolescents with disability were selected for this study.

RESULTS

We studied the extension and the severity of impairment of body functions (BF) and/or of activity (A&P) restriction, and the extension and the intensity of facilitators and barriers (EF) together with other factors such as provenience (Local Health Authorities - LHA), main health condition and age of the subjects. The analysis of variance, taking into account LHA, main health condition and age, confirmed the statistical significance of these three factors in differentiating the personal profiles in terms of BF, A&P and EF.

CONCLUSIONS

The study shows the feasibility and reliability of the use of ICF-based functioning descriptions to monitor school inclusion processes and to better investigate the differences between LHAs in diagnostic procedures, disease prevalence and characteristics of facilitators and barriers. As a direct consequence of the study, the Regional Councils for Instruction, Health and Social Politics have started a 3-year training programme for approximately 2500 school operators, 350 health operators in NPI services and 350 social operators.

摘要

目的

在皮埃蒙特地区,与意大利其他地区一样,将“残疾学生”融入普通班级的学校融合,无论他们患有何种疾病,都涉及到 3 至 14 岁之间的几乎所有学生,以及 14 至 18 岁之间的大多数学生。“识别残疾学生”的责任在于区域公共卫生系统(儿童神经精神病学服务 - CNPS)。学生信息记录在区域 NPI.net 中,这是一个基于网络的应用程序。问题是 ICF 是否可以帮助开发一个比现有系统更好的学校融合过程监测系统。事实上,由于所有信息都基于嵌入在叙述性描述中的医学诊断,因此很难获得关于残疾状况和儿童青少年学校体验质量的可靠和可比数据。

方法

六个覆盖皮埃蒙特地区 50%的 CNPS 开始了一项针对在校残疾儿童的试点研究。考虑了儿童的诊断数据和使用 ICF 对其功能状况的简要描述。大约 1000 名残疾儿童和青少年被选为这项研究的对象。

结果

我们研究了身体功能(BF)和/或活动限制(A&P)受限的程度和严重程度,以及促进因素和障碍(EF)的程度和强度,以及其他因素,如所在地(地方卫生局 - LHA)、主要健康状况和研究对象的年龄。考虑到 LHA、主要健康状况和年龄,方差分析证实了这三个因素在区分 BF、A&P 和 EF 方面的个人特征方面具有统计学意义。

结论

该研究表明,使用基于 ICF 的功能描述来监测学校融合过程并更好地调查地方卫生局在诊断程序、疾病流行率以及促进因素和障碍特征方面的差异是可行和可靠的。作为这项研究的直接结果,地区教育、卫生和社会政策委员会为大约 2500 名学校经营者、NPI 服务的 350 名卫生经营者和 350 名社会经营者启动了一个为期 3 年的培训计划。

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