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应对父母癌症:儿童网络同伴支持。

Coping with parental cancer: web-based peer support in children.

机构信息

Department of Clinical Psychology, VU University, Amsterdam, The Netherlands.

出版信息

Psychooncology. 2010 Aug;19(8):887-92. doi: 10.1002/pon.1636.

DOI:10.1002/pon.1636
PMID:19998331
Abstract

OBJECTIVE

To investigate the use and content of web-based peer support in children coping with parental cancer.

METHODS

In children aged above 12 years, 158 forum discussions on the Dutch website www.kankerspoken.nl in a time-period of 3 months were investigated. Age, gender, number of discussions, participation and main activities on the website were quantitatively assessed. Contents of the discussions were qualitatively analyzed.

RESULTS

In total, 129 children and 8 adults participated on the website with an average age of 15.3 years. The majority was female (80%). On average, a child was on-line for 3 days and participated in 4 to 5 forum discussions. Main activities on the website were sharing personal experience, providing encouragement/support, providing and seeking information or advice and seeking contact outside of the website. Qualitative content analysis revealed that children regularly faced emotional problems and experienced a lack of understanding and communication in their direct environment.

CONCLUSIONS

In dealing with parental cancer, children experience a variety of difficulties. This study offers a window into the use of web-based peer support by children dealing with parental cancer.

摘要

目的

调查儿童应对父母癌症时使用基于网络的同伴支持的情况和内容。

方法

在年龄大于 12 岁的儿童中,调查了荷兰网站 www.kankerspoken.nl 上 3 个月内的 158 个论坛讨论。对年龄、性别、讨论次数、参与度和网站上的主要活动进行了定量评估。对讨论内容进行了定性分析。

结果

共有 129 名儿童和 8 名成年人在该网站上参与,平均年龄为 15.3 岁。大多数为女性(80%)。平均而言,儿童在线时间为 3 天,参与 4 到 5 次论坛讨论。网站上的主要活动包括分享个人经历、提供鼓励/支持、提供和寻求信息或建议以及在网站外寻求联系。定性内容分析显示,儿童经常面临情绪问题,并在直接环境中感到理解和沟通不足。

结论

在应对父母癌症时,儿童会遇到各种困难。本研究为儿童应对父母癌症时使用基于网络的同伴支持提供了一个窗口。

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