Faculty of Medicine, Department Logopedics and Audiological Sciences, O&N2 Herestraat 49 b721, 3000 Leuven, Belgium.
Disabil Rehabil. 2010;32(3):173-82. doi: 10.3109/09638280903071867.
To examine the quality of life (QoL) of people with aphasia and to study the influence of variables such as age, time post onset and (degree of) social support on the QoL of aphasic persons.
We compared the scores of an aphasic population (N = 43) with those of a healthy control group (N = 43) and of a group of patients with brain lesions without neurogenic communication disorders (N = 43) on a Dutch version of the Stroke and Aphasia Quality of Life-scale (SAQoL-39) and on a social support questionnaire. In half of the aphasic group, the SAQoL-39 was re-administered 8 months after the first testing.
People with aphasia obtained significantly lower scores for QoL measures compared with both other groups. Especially, communicative and psychosocial factors seem to influence these results. Older people with aphasia scored lower than younger persons and women tend to evaluate their QoL somewhat more negatively than men. Persons who had aphasia for more than 6 months tended to have higher QoL-scores compared with those who had become aphasic more recently. After 8 months, the retested group scored significantly higher on communication and on psychosocial functioning than on first testing.
Gathering information on QoL after suffering from stroke and from aphasia can lead to a better understanding of the problems involved. The clinical use of instruments such as the SAQoL-39 can probably contribute to a more patient oriented rehabilitation, whereby the focus not only lie in improving linguistic skills but also on reducing the impairments and the handicaps that accompany aphasia and thus on increasing QoL.
考察失语症患者的生活质量（QoL），并研究年龄、发病后时间和（社会支持程度）等变量对失语症患者 QoL 的影响。
我们比较了荷兰版脑卒中与失语症生活质量量表（SAQoL-39）和社会支持问卷中失语症人群（N=43）、无神经源性交流障碍脑损伤患者（N=43）和健康对照组（N=43）的得分。在一半的失语症患者中，8 个月后再次进行了 SAQoL-39 测试。
与其他两组相比，失语症患者的 QoL 指标得分明显较低。特别是交流和心理社会因素似乎影响了这些结果。年龄较大的失语症患者比年轻患者得分更低，女性比男性更倾向于对自己的 QoL 做出更消极的评价。失语症持续时间超过 6 个月的患者的 QoL 评分比最近才出现失语症的患者更高。8 个月后，重新测试组在交流和心理社会功能方面的得分明显高于首次测试。
了解脑卒中后和失语症后的生活质量信息可以更好地理解所涉及的问题。SAQoL-39 等工具的临床应用可能有助于更以患者为中心的康复，不仅关注语言技能的提高，还关注减少伴随失语症的损伤和障碍，从而提高 QoL。
