Giles Michelle L, Hellard Margaret E, Lewin Sharon R, O'Brien Mary L
The Alfred Hospital, Infectious Diseases Unit, Melbourne, Australia.
AIDS Care. 2009 Oct;21(10):1230-7. doi: 10.1080/09540120902803166.
This paper explores HIV-infected women's experiences of considering and using recommended interventions during pregnancy and postpartum to reduce mother-to-child transmission of HIV. Data were collected from 45 HIV-infected women aged 18-44 years living in Melbourne, Australia. A semi-structured interview was used to collect qualitative information on women's reproductive experience and intentions. The 15 women who had their children after their HIV diagnosis engaged in significant work including surveillance and safety work to minimise stigma and infection, information work to inform decisions and actions, accounting work to calculate risk and benefit, hope and worry work concerning a child's infection status and impact of interventions, work to redefine an acceptable maternal identity, work to prepare an alternative story to counter the disclosure effect of the intervention and emotional work to reconcile guilt when considering these interventions. This study provides a framework to help clinicians understand the real and on-going "work" that women engage in when they are considering interventions recommended by their physicians to reduce transmission of HIV. Even in circumstances where access to and acceptance of interventions are high, women continue to engage in this work even after they have a made a decision about a particular intervention.
本文探讨了感染艾滋病毒的妇女在孕期和产后考虑并使用推荐干预措施以减少母婴传播艾滋病毒的经历。数据收集自澳大利亚墨尔本45名年龄在18至44岁之间的感染艾滋病毒的妇女。采用半结构化访谈收集有关妇女生殖经历和意图的定性信息。15名在确诊感染艾滋病毒后生育子女的妇女开展了大量工作,包括监测和安全工作以尽量减少耻辱感和感染风险、信息工作以指导决策和行动、核算工作以计算风险和益处、关于孩子感染状况及干预措施影响的希望和担忧工作、重新定义可接受的母亲身份的工作、准备替代故事以应对干预措施的披露影响的工作,以及在考虑这些干预措施时调和内疚感的情感工作。本研究提供了一个框架,以帮助临床医生理解妇女在考虑医生推荐的减少艾滋病毒传播的干预措施时所进行的实际且持续的“工作”。即使在干预措施的可及性和接受度较高的情况下,妇女在就特定干预措施做出决定后仍会继续进行这项工作。