Kelly Carmel, Reid Esther, Lohan Maria, Alderdice Fiona, Spence Dale
School of Nursing & Midwifery, Queen's University Belfast, 97 Lisburn Road, Belfast BT9 7BL, UK.
Int J Environ Res Public Health. 2014 Oct 14;11(10):10504-17. doi: 10.3390/ijerph111010504.
Patient narratives have much to teach healthcare professionals about the experience of living with a chronic condition. While the biomedical narrative of HIV treatment is hugely encouraging, the narrative of living with HIV continues to be overshadowed by a persuasive perception of stigma. This paper presents how we sought to translate the evidence from a qualitative study of the perspectives of HIV affected pregnant women and expectant fathers on the care they received, from the pre conception to post natal period, into educational material for maternity care practice. Narrative scripts were written based on the original research interviews, with care taken to reflect the key themes from the research. We explore the way in which the qualitative findings bring to life patient and partner experiences and what it means for nurses, midwives and doctors to be prepared to care for couples affected by HIV. In so doing, we challenge the inequity between the dominance of biomedical knowledge over understanding the patient experience in the preparation of health professionals to care for HIV affected women and men who are having a baby or seeking to have a baby.
患者的叙述能让医疗保健专业人员深入了解慢性病患者的生活体验。虽然关于艾滋病毒治疗的生物医学叙述非常鼓舞人心,但感染艾滋病毒后的生活叙述仍因一种具有说服力的耻辱感而黯然失色。本文介绍了我们如何试图将一项定性研究的证据转化为产科护理实践的教育材料,该研究探讨了感染艾滋病毒的孕妇及其准父亲对她们从孕前到产后所接受护理的看法。叙事脚本是根据原始研究访谈编写的,编写时注意反映研究中的关键主题。我们探讨了定性研究结果如何生动呈现患者及其伴侣的经历,以及护士、助产士和医生为照顾受艾滋病毒影响的夫妇做好准备意味着什么。通过这样做,我们挑战了在培养卫生专业人员照顾感染艾滋病毒且正在生育或打算生育的妇女和男子的过程中,生物医学知识在理解患者体验方面占据主导地位所导致的不公平现象。