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[对莫普提(马里)结核病的社会人类学研究:大众认知与治疗应用]

[Social anthropological approach to tuberculosis in Mopti (Mali): popular representations and use of treatment].

作者信息

Berthe A, Maguiraga F, Traoré L, Mugisho E, Drabo M, Traoré A K, Dujardin B, Huygens P

机构信息

Sciences de l'homme pour l'aide à la décision, à l'action et à l'évaluation des interventions (SHADEI), centre Muraz, 01 BP 390 Bobo-Dioulasso 01, Burkina Faso.

出版信息

Sante. 2009 Apr-Jun;19(2):87-93. doi: 10.1684/san.2009.0150.

Abstract

In Mali, there were 4508 new cases of tuberculosis in 2003, and 5222 in 2006. Tuberculosis (TB) is thus an important public health problem, decreasing the physical, financial and social capital of individuals, their families and society. Because responses to TB have not yet applied a sufficiently integrated approach that can improve patients' access to quality care, this FORESA project advocates a patient-centered approach. Before any intervention, FORESA thus sought to analyse the situation of TB in Mali and responses to it. The study aims to analyse the discourse about and popular representations of TB (its forms, its signs), the situations in which people are exposed to it or transmit it, and popular practices related to its prevention and the experience of having it. This qualitative, descriptive and analytical study includes a literature review, in-depth interviews with opinion leaders, community health workers and TB patients, focus groups, and the observations of practices. The interviews were recorded, transcribed, and analysed. Subjects provided informed consent to participation. This study showed that: * the terms for TB in local languages (Bambara, Dogon and Fulfuldé) include white cough, big cough, and long cough; * These communities differentiate between 2 main forms of cough (simple and wet); * TB is perceived as a transmissible disease, a disease of contact with a contaminated body or objects; * TB is seen as a serious, contagious, hereditary, shameful disease that may result from the transgression of social norms; * The prevention of TB consists of avoiding people who have the disease or transmitting factors; * Therapeutic remedies, in order, are self-medication, the use of traditional healers, and finally visits to health centres; * The population wants more information about TB and be involved in the fight against it. This study shows the many points of convergence about TB nosology, etiology and therapy between the Mopti population and other groups in Mali (including the Mande, Senoufo and Soso), between the population of Mali and some ethnic groups in Burkina Faso (such as the Dioula, Bobo, Tiéfo Vigué), and between the population of Mali and, Burkina Faso and others in Africa (Gambia, Nigeria, South Africa, etc.). There is also a difference between popular knowledge about TB and biomedical knowledge. The population does not know that TB is transmitted mainly, even exclusively, by nasal droplets or that patients are no longer contagious after two weeks of treatment. The widespread dissemination of this information may have a positive effect, reducing stigmatization and improving access to treatment. Mali must strengthen the skills of all participants in the fight against tuberculosis, to strengthen their framework and to monitor and evaluate their activities.

摘要

2003年,马里新增4508例结核病病例,2006年新增5222例。因此,结核病是一个重要的公共卫生问题,它削弱了个人、其家庭及社会的身体、经济和社会资本。由于针对结核病的应对措施尚未充分采用能够改善患者获得优质护理的综合方法,FORESA项目倡导以患者为中心的方法。因此,在进行任何干预之前,FORESA试图分析马里的结核病状况及其应对措施。该研究旨在分析关于结核病(其形式、症状)的论述和大众认知,人们接触或传播结核病的情况,以及与其预防和患病经历相关的大众做法。这项定性、描述性和分析性研究包括文献综述、对意见领袖、社区卫生工作者和结核病患者的深入访谈、焦点小组讨论以及对做法的观察。访谈进行了录音、转录和分析。受试者提供了参与研究的知情同意书。该研究表明:* 当地语言(班巴拉语、多贡语和富尔富尔语)中结核病的表述包括白咳、大咳和久咳;* 这些社区区分两种主要的咳嗽形式(单纯性和湿性);* 结核病被视为一种可传播的疾病,一种与受污染身体或物体接触而感染的疾病;* 结核病被视为一种严重、传染性、遗传性且可耻的疾病,可能是违反社会规范所致;* 结核病的预防包括避开患有该病或有传播因素的人;* 治疗方法依次为自我用药、求助传统治疗师,最后是前往健康中心就诊;* 民众希望获得更多关于结核病的信息并参与抗击结核病的行动。该研究表明,莫普提人群与马里其他群体(包括曼德人、塞努福人和索索人)、马里人群与布基纳法索的一些族群(如迪乌拉人、波波人、蒂埃福·维盖人)以及马里人群与布基纳法索及非洲其他地区(冈比亚、尼日利亚、南非等)在结核病分类学、病因学和治疗方面存在许多共同点。大众对结核病的认知与生物医学知识之间也存在差异。民众不知道结核病主要甚至完全是通过飞沫传播的,也不知道患者在治疗两周后就不再具有传染性。广泛传播这些信息可能会产生积极影响,减少污名化并改善治疗的可及性。马里必须加强所有抗击结核病参与者的技能,强化其框架并监测和评估其活动。

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