Peterson Eric D, Roe Matthew T, Rumsfeld John S, Shaw Richard E, Brindis Ralph G, Fonarow Gregg C, Cannon Christopher P
Duke Clinical Research Institute, Duke University Medical Center, Durham, NC 27705, USA.
Circ Cardiovasc Qual Outcomes. 2009 Sep;2(5):491-9. doi: 10.1161/CIRCOUTCOMES.108.847145.
There is a recognized need for a national unified registry to track presenting features, care, and outcomes for patients with acute myocardial infarction. To address this need, the American Heart Association's Get With the Guidelines-Coronary Artery Disease program joined the Acute Coronary Treatment and Intervention Outcomes Network (ACTION) Registry to create the National Cardiovascular Data Registry ACTION-Get With the Guidelines (AR-G) in June of 2008. This article outlines the objectives, operational structure, patient population, data elements, data collection methodology, and reporting components of this landmark registry.
The AR-G was launched in January of 2007. The registry is led by a team of volunteers from the American Heart Association and the American College of Cardiology, and its data coordinating center resides at the Duke Clinical Research Institute. As of December 2008, 344 US hospitals already contributed detailed clinical information on 103 890 myocardial infarction patients (inclusive of 39% ST-segment myocardial infarction and 61% non-ST-segment myocardial infarction patients). Overall data quality has been excellent, with <5% clinical fields missing. Site quality improvement efforts are supported via detailed quarterly feedback reports, routine web educational programs, and sharing of "best practice" clinical support tools.
The AR-G represents a unified, national, acute myocardial infarction registry and supports a robust quality improvement effort designed to encourage evidence-based acute myocardial infarction care and, ultimately, improve patient outcomes.
人们认识到需要一个全国统一的登记系统来跟踪急性心肌梗死患者的临床表现、治疗情况和预后。为满足这一需求,美国心脏协会的“遵循指南-冠状动脉疾病”项目于2008年6月与急性冠状动脉治疗和干预结果网络(ACTION)登记处合作,创建了国家心血管数据登记处ACTION-遵循指南(AR-G)。本文概述了这个具有里程碑意义的登记处的目标、运作结构、患者群体、数据元素、数据收集方法和报告内容。
AR-G于2007年1月启动。该登记处由美国心脏协会和美国心脏病学会的一组志愿者领导,其数据协调中心设在杜克临床研究所。截至2008年12月,344家美国医院已提供了103890例心肌梗死患者的详细临床信息(包括39%的ST段抬高型心肌梗死患者和61%的非ST段抬高型心肌梗死患者)。总体数据质量良好,临床字段缺失率<5%。通过详细的季度反馈报告、常规网络教育项目以及“最佳实践”临床支持工具的共享来支持各医院的质量改进工作。
AR-G代表了一个统一的、全国性的急性心肌梗死登记处,并支持一项强有力的质量改进工作,旨在鼓励基于证据的急性心肌梗死治疗,并最终改善患者预后。