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脑损伤患者的社会再融入:提供长期支持的解决方案。

Social reintegration of TBI patients: a solution to provide long-term support.

机构信息

Gdansk Center for Neuropsychological Testing, Gdansk-South Private Health Care Center, Gdansk, Poland.

出版信息

Med Sci Monit. 2010 Jan;16(1):PH14-23.

Abstract

BACKGROUND

This article evaluates the effectiveness of a workable long-term program to provide social support for TBI patients, based on the "Academy of Life" concept. Disability after TBI causes numerous disruptions of normal life, which affect the patient, the family, and society. The patient needs the particular kind of support the program was designed to provide.

MATERIAL/METHODS: The study involved 200 married couples with a TBI spouse previously enrolled in the "Academy of Life." The methods included documentation analysis, clinical interviews, the Family Bonds Scale, the Social Isolation Scale, and the Social Functions subscale from a battery used to evaluate QOL after TBI. The subjects were examined before and after completing the program.

RESULTS

In the first examination all types of family bonds were found to be severely weakened; there was deep social isolation, loneliness, sadness, a feeling of being surrounded by hostility, and no purposeful social activity. The most common form of support from significant others was pity and unwanted interference, accompanied by lack of understanding and social ostracism. In the second examination there was selective improvement of all parameters, significantly greater in patients without PTSD symptoms. The best effects were achieved in the reduction of social dysfunctions, the growth of purposeful social activity, and improvement in the type of support received, and a reduction of selected parameters of social isolation.

CONCLUSIONS

The program here described is selectively effective for the social reintegration of TBI-patients, especially those without PTSD symptoms.

摘要

背景

本文评估了一个基于“生活学院”理念的可行的长期项目,以提供创伤性脑损伤(TBI)患者社会支持的效果。TBI 后的残疾会对患者、家庭和社会造成诸多正常生活的干扰。患者需要该项目旨在提供的特殊支持。

材料/方法:这项研究涉及 200 对已婚夫妇,他们的配偶曾参加过“生活学院”。研究方法包括文献分析、临床访谈、家庭纽带量表、社会隔离量表和用于评估 TBI 后生活质量的电池中的社会功能子量表。在完成该项目之前和之后对受试者进行了检查。

结果

在第一次检查中,发现所有类型的家庭纽带都严重减弱;存在深度社会隔离、孤独、悲伤、被敌意包围的感觉以及无目的的社会活动。重要他人最常见的支持形式是同情和不必要的干涉,同时伴有缺乏理解和社会排斥。在第二次检查中,所有参数都有选择性地改善,无创伤后应激障碍症状的患者改善更为显著。在减少社会功能障碍、增加有目的的社会活动、改善所获得的支持类型以及减少某些社会隔离参数方面取得了最佳效果。

结论

本文所描述的方案对 TBI 患者的社会再融入具有选择性效果,特别是对无创伤后应激障碍症状的患者效果更为显著。

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