The Norwegian Centre for Movement Disorders, Stavanger University Hospital, Stavanger, Norway.
Acta Neurol Scand. 2010 Nov;122(5):336-42. doi: 10.1111/j.1600-0404.2009.01313.x.
To examine how coping styles among patients with multiple sclerosis (MS) change over time and how patients' coping styles after 5 years are associated with disability pension.
Seventy-six MS patients and 94 healthy controls were included in this study. The patients were examined at baseline and 5 years later. This included a neurological examination and information on disability pension and a questionnaire assessing coping (the COPE scale). Controls were registered at baseline only.
Compared to healthy controls, MS patients were more passive in coping with disease related distress. This was even more pronounced 5 years later. Disability pensioned patients employed more social support, venting of emotions and behavioural disengagement at follow-up.
This study shows that patients with MS employ coping styles that may be inadequate and this is not improved by adaption over time. Although patients also use strategies to enhance their lives, these findings suggest that there may be a potential for improving the lives of patients with MS through interventions that may enhance adequate coping with the disease.
研究多发性硬化症（MS）患者的应对方式随时间的变化情况，以及患者 5 年后的应对方式与残疾抚恤金之间的关系。
本研究纳入了 76 名 MS 患者和 94 名健康对照者。这些患者在基线时和 5 年后接受了检查。检查包括神经系统检查以及残疾抚恤金和应对方式问卷（COPE 量表）的信息。对照组仅在基线时登记。
与健康对照组相比，MS 患者在应对疾病相关困扰时更被动。5 年后这种情况更为明显。残疾抚恤金患者在随访时更多地使用社会支持、情绪宣泄和行为脱离。
这项研究表明，MS 患者采用的应对方式可能不够充分，而且随着时间的推移并没有得到改善。尽管患者也会使用一些策略来改善生活，但这些发现表明，通过干预措施提高患者对疾病的适当应对能力，可能会改善 MS 患者的生活。
