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儿童死亡:父母对悲伤强度的认知——临终关怀与丧亲照护

Death of a child: Parental perception of grief intensity - End-of-life and bereavement care.

作者信息

Michon Bruno, Balkou Steve, Hivon René, Cyr Claude

机构信息

Département de pédiatrie.

出版信息

Paediatr Child Health. 2003 Jul;8(6):363-6. doi: 10.1093/pch/8.6.363.

Abstract

OBJECTIVE

The death of a child is a tragedy resulting in family trauma and disorganization. The present study sought to evaluate the intensity of grief experienced by parents who have lost a child in the perinatal period (stillbirth, premature baby, term baby less than one month) and parents who have lost a child after the perinatal period (one month to 18 years).

METHOD

To compare the intensities of the bereavement reactions among grieving parents and to follow the course of such phenomena, a detailed bereavement questionnaire (the French version of the Texas Revised Inventory of Grief [TRIG-F]) was used. The TRIG-F is a three-part questionnaire that quantifies the intensity of grief near the time of death and in the present, and the perceived capacity of coping.

RESULTS

Seventy-one bereaved parents, representing 43 families, completed the questionnaire. Parents who lost a child after the perinatal period showed grief at a higher intensity, measured by the TRIG-F, than parents who had lost a child in the perinatal period (83+/-22 versus 69+/-20 [mean+/-SD]; P=0.004). Mothers expressed a greater intensity of grief than fathers. No significant difference between mothers of the perinatal group and mothers of the postperinatal group was shown. Sudden death and death ocurring at home were associated with a higher grief intensity.

CONCLUSION

Bereavement after the loss of a newborn or an older child is intense and prolonged. These findings support the importance of bereavement care for grieving parents and suggest that these parents appreciate help from health care professionals.

摘要

目的

儿童死亡是一场悲剧,会给家庭带来创伤并导致家庭失序。本研究旨在评估在围产期失去孩子(死产、早产婴儿、出生未满一个月的足月儿)的父母以及在围产期之后(一个月至18岁)失去孩子的父母所经历的悲痛强度。

方法

为了比较悲伤父母的丧亲反应强度并追踪此类现象的发展过程,使用了一份详细的丧亲问卷(《德克萨斯修订哀伤量表》的法语版[TRIG-F])。TRIG-F是一份三部分的问卷,用于量化死亡时及当下的悲痛强度以及感知到的应对能力。

结果

71位丧亲父母(代表43个家庭)完成了问卷。根据TRIG-F测量,在围产期之后失去孩子的父母表现出的悲痛强度高于在围产期失去孩子的父母(83±22对69±20[均值±标准差];P = 0.004)。母亲表达的悲痛强度高于父亲。围产期组的母亲与围产期后组的母亲之间未显示出显著差异。猝死和在家中发生的死亡与更高的悲痛强度相关。

结论

失去新生儿或大龄儿童后的丧亲之痛强烈且持久。这些发现支持了为悲伤父母提供丧亲护理的重要性,并表明这些父母感激医护人员的帮助。

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