Durà-Vilà Glòria, Dein Simon, Hodes Matthew
Imperial College, London, UK.
Clin Child Psychol Psychiatry. 2010 Apr;15(2):171-84. doi: 10.1177/1359104509341009. Epub 2010 Jan 29.
Raising a child with intellectual disability (ID) has significant consequences for parents and family. The impact of the disability has been found to be influenced by the sociocultural context. This paper aims to show how for some parents the experience of an offspring with ID is not interpreted as a loss but as a gain because of the parents' attribution of sacred meaning. It is suggested that these beliefs influence parental care, and are related to a high level of parental concern and closeness. This has implications for family relationships and life-cycle, as well as help-seeking and service uptake. The article provides a brief review of relevant research studies, a description of two illustrative case reports and discussion, including possible future research directions.
抚养一名智障儿童对父母和家庭会产生重大影响。研究发现，这种残疾的影响会受到社会文化背景的影响。本文旨在说明，对于一些父母来说，由于他们赋予了神圣的意义，有智障子女的经历并非被视为一种损失，而是一种收获。研究表明，这些信念会影响父母的照料，并且与父母高度的关切和亲密程度有关。这对家庭关系和生命周期，以及寻求帮助和接受服务都有影响。本文简要回顾了相关研究，描述了两个具有说明性的案例报告并进行了讨论，包括可能的未来研究方向。
