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父母对儿童疾病的认知。

Parental perceptions of childhood illness.

作者信息

Peri G, Molinari E, Taverna A

机构信息

Department of Psychology, Catholic University of Milan, Italy.

出版信息

J Asthma. 1991;28(2):91-101. doi: 10.3109/02770909109082733.

Abstract

This article takes parental perception as the starting point of an analysis of the relationship between ill children, their families, and their doctors in the handling of a child's illness. A modified version of Creer, Marion, and Creer's Asthma Problem Behavior Checklist, adapted to suit Italian conditions, was used. The questionnaire was given to a sample of 460 parents of 230 preadolescent children. The sample was divided into two groups: The first sample was comprised of 84 parents of 42 preadolescent children with atopic symptoms (asthma, bronchitis, or hay fever), and the second sample was comprised of 376 parents of 188 preadolescents who had never had either atopic disturbances or any other serious disease. The results showed that both groups of parents felt their children were capable of autonomously managing their disease, and that they see medical facilities as their primary resource. Children were not perceived as being altered by their illness, although their illness undoubtedly affected family relationships; this was particularly true in the case of families with members who experience atopic problems. The factors causing the greatest difficulties were: disagreements over treatment, anxiety caused by the disease, and the sacrifices made by family members as a result of illness.

摘要

本文以家长的认知为出发点,分析患病儿童、其家庭以及医生在应对儿童疾病过程中的关系。使用了经修改的克里尔、马里恩和克里尔的哮喘问题行为清单,该清单已根据意大利的情况进行了调整。问卷发放给了230名青春期前儿童的460名家长组成的样本。样本分为两组:第一个样本由42名有特应性症状(哮喘、支气管炎或花粉热)的青春期前儿童的84名家长组成,第二个样本由188名从未有过特应性疾病或任何其他严重疾病的青春期前儿童的376名家长组成。结果表明,两组家长都认为他们的孩子有能力自主管理自己的疾病,并且他们将医疗设施视为主要资源。尽管孩子的疾病无疑会影响家庭关系,但家长并不认为孩子会因疾病而改变;对于有成员患有特应性问题的家庭来说尤其如此。造成最大困难的因素是:治疗方面的分歧、疾病引起的焦虑以及家庭成员因疾病而做出的牺牲。

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