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炎症性肠病:20世纪90年代患者的期望

Inflammatory bowel disease: patients' expectations in the 1990s.

作者信息

Probert C S, Mayberry J F

机构信息

Leicester General Hospital.

出版信息

J R Soc Med. 1991 Mar;84(3):131-2. doi: 10.1177/014107689108400305.

DOI:10.1177/014107689108400305
PMID:2013890
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1293129/
Abstract

A group of 70 patients with inflammatory bowel disease were asked to complete a questionnaire about their disease counselling preferences, 59 replied. Seventy-five per cent wanted further advice about their disease. Of these, 60% wished to receive the advice by discussion with a trained advisor. Seventy-six per cent wanted this person to be a hospital specialist, but 50% would accept advice from a specialty trained nurse. Eighty-six per cent would like this in conjunction with 'same day' telephone advice from a hospital specialist and 85% of patients wish to be taught how to adjust their own therapy. There is an increasingly important role for nurse counsellors in the management of these diseases.

摘要

一组70名炎症性肠病患者被要求填写一份关于他们疾病咨询偏好的问卷,59人做出了回复。75%的患者希望获得更多关于他们疾病的建议。其中,60%希望通过与训练有素的顾问讨论来获得建议。76%的患者希望这个人是医院专科医生,但50%的患者会接受专科培训护士的建议。86%的患者希望能与医院专科医生的“当日”电话咨询相结合,85%的患者希望学习如何调整自己的治疗方案。护士顾问在这些疾病的管理中发挥着越来越重要的作用。

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本文引用的文献

1
What the patient wants to know about Crohn's disease.患者想了解的关于克罗恩病的信息。
J Clin Gastroenterol. 1983 Jun;5(3):221-2. doi: 10.1097/00004836-198306000-00005.
2
[Extent of drug compliance in Crohn disease patients--study of a special ambulatory care unit of a university clinic].[克罗恩病患者的药物依从程度——一所大学诊所特殊门诊护理单元的研究]
Z Gastroenterol. 1984 Oct;22(10):573-9.
3
Information assessment by patients of a booklet on Crohn's disease.患者对一本关于克罗恩病宣传册的信息评估。
Public Health. 1985 Jul;99(4):239-42. doi: 10.1016/s0033-3506(85)80027-5.
4
The diabetes education study: a controlled trial of the effects of diabetes patient education.糖尿病教育研究:一项关于糖尿病患者教育效果的对照试验
Diabetes Care. 1986 Jan-Feb;9(1):1-10. doi: 10.2337/diacare.9.1.1.
5
Effect of information booklet on patients' anxiety levels and consultation rates in Crohn's disease.信息手册对克罗恩病患者焦虑水平及咨询率的影响。
Public Health. 1986 May;100(3):184-6. doi: 10.1016/s0033-3506(86)80033-6.
6
The subjective experience of chronic disease: some implications for the management of ulcerative colitis.慢性病的主观体验:对溃疡性结肠炎管理的一些启示
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7
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Hepatogastroenterology. 1987 Aug;34(4):182-5.
8
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Nursing. 1987 Aug;17(8):47-9. doi: 10.1097/00152193-198708000-00018.
9
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10
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