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关于人工耳蜗植入的决策:父母为其失聪子女做出选择。

Coming to a decision about cochlear implantation: parents making choices for their deaf children.

作者信息

Hyde Merv, Punch Renée, Komesaroff Linda

机构信息

School of Education and Professional Studies, Griffith University, Gold Coast Campus, Gold Coast, Queensland 4222, Australia.

出版信息

J Deaf Stud Deaf Educ. 2010 Spring;15(2):162-78. doi: 10.1093/deafed/enq004. Epub 2010 Feb 5.

DOI:10.1093/deafed/enq004
PMID:20139157
Abstract

This study combined quantitative and qualitative methods in a sequential approach to investigate the experiences of parents making decisions about cochlear implants for their deaf children. Quantitative findings from a survey instrument completed by 247 parents were extended and elaborated by qualitative findings from in-depth interviews with 27 of the survey respondents. Although parents used a variety of information sources when considering an implant, cochlear implant centers and doctors comprised their major source of information. Most parents found the decision-making process difficult and stressful, but a proportion reported finding the decision easy, believing that there was no other option for their child, and were keen for implantation to proceed as soon as possible. Implications for professionals working with families are discussed.

摘要

本研究采用顺序法结合定量和定性方法,以调查父母为其失聪儿童决定是否植入人工耳蜗的经历。对247名家长填写的调查问卷进行定量分析,再通过对其中27名受访者进行深入访谈得出的定性结果,对定量结果进行了扩展和细化。尽管家长在考虑植入人工耳蜗时使用了多种信息来源,但人工耳蜗植入中心和医生是他们的主要信息来源。大多数家长认为决策过程困难且压力大,但有一部分家长表示觉得决策容易,认为他们的孩子没有其他选择,并渴望尽快进行植入手术。文中还讨论了对与家庭打交道的专业人员的启示。

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