Department of Communication, University of Cincinnati, 120B McMicken Hall, Cincinnati, OH, USA.
Patient Educ Couns. 2017 Aug;100(8):1544-1551. doi: 10.1016/j.pec.2017.03.005. Epub 2017 Mar 6.
To understand the dynamic experiences of parents undergoing the decision-making process regarding cochlear implants for their child(ren).
Thirty-three parents of d/Deaf children participated in semi-structured interviews. Interviews were digitally recorded, transcribed, and coded using iterative and thematic coding.
The results from this study reveal four salient topics related to parents' decision-making process regarding cochlear implantation: 1) factors parents considered when making the decision to get the cochlear implant for their child (e.g., desire to acculturate child into one community), 2) the extent to which parents' communities influence their decision-making (e.g., norms), 3) information sources parents seek and value when decision-making (e.g., parents value other parent's experiences the most compared to medical or online sources), and 4) personal experiences with stigma affecting their decision to not get the cochlear implant for their child.
This study provides insights into values and perspectives that can be utilized to improve informed decision-making, when making risky medical decisions with long-term implications.
With thorough information provisions, delineation of addressing parents' concerns and encompassing all aspects of the decision (i.e., medical, social and cultural), health professional teams could reduce the uncertainty and anxiety for parents in this decision-making process for cochlear implantation.
了解父母在为孩子做出人工耳蜗植入决策时的动态体验。
33 名聋儿家长参与了半结构化访谈。访谈采用迭代和主题编码进行数字记录、转录和编码。
本研究的结果揭示了父母在人工耳蜗植入决策过程中的四个突出主题：1）父母在为孩子做出植入决定时考虑的因素（例如，希望将孩子融入一个社区）；2）父母所在社区对其决策的影响程度（例如，规范）；3）父母在决策时寻求和重视的信息来源（例如，与医疗或在线来源相比，父母最看重其他父母的经验）；4）个人经历的污名化影响他们决定不给孩子植入人工耳蜗。
本研究深入了解了可以用来改善知情决策的价值观和观点，在做出具有长期影响的高风险医疗决策时尤其如此。
通过提供全面的信息、解决父母的关切以及涵盖决策的所有方面（即医疗、社会和文化），医疗专业团队可以减轻父母在人工耳蜗植入决策过程中的不确定性和焦虑。
