影响听力损失儿童家长改变沟通方式决策的因素
Factors Influencing Caregiver Decision Making to Change the Communication Method of their Child with Hearing Loss.
作者信息
Scarinci Nerina A, Gehrke Monica J, Ching Teresa Y C, Marnane Vivienne, Button Laura
机构信息
School of Health & Rehabilitation Sciences, The University of Queensland, St Lucia, Australia.
The HEARing Cooperative Research Centre, Melbourne, Australia.
出版信息
Deafness Educ Int. 2018;20(3-4):123-153. doi: 10.1080/14643154.2018.1511239. Epub 2018 Aug 27.
The communication journey of a child with hearing loss is often a complex, interwoven process in which the child's use of language or method of communication may change numerous times. As there has been limited research exploring the caregiver decision making process behind making such changes, this qualitative descriptive study aimed to explore the factors which influence the caregiver decision making process to change the communication method of their child with hearing loss. Individual semi-structured in-depth interviews were conducted with seven caregivers of children with hearing loss in Australia. Thematic analysis revealed five key themes which influenced caregiver decisions regarding changes to their child's method of communication, including: (1) family characteristics; (2) family access to information; (3) family strengths; (4) family beliefs; and (5) family-centered practice. The overall finding that the family unit is at the core of decision-making has important clinical implications regarding early intervention professionals' provision of family-centered services when working with the families of children with hearing loss.
听力受损儿童的沟通历程往往是一个复杂、相互交织的过程，在此过程中，儿童的语言使用或沟通方式可能会多次改变。由于探索此类改变背后照顾者决策过程的研究有限，这项定性描述性研究旨在探究影响照顾者为听力受损儿童改变沟通方式的决策过程的因素。对澳大利亚七名听力受损儿童的照顾者进行了个体半结构化深度访谈。主题分析揭示了影响照顾者关于改变其孩子沟通方式决策的五个关键主题，包括：(1)家庭特征；(2)家庭信息获取；(3)家庭优势；(4)家庭信念；以及(5)以家庭为中心的实践。家庭单位是决策核心这一总体发现，对于早期干预专业人员在与听力受损儿童家庭合作时提供以家庭为中心的服务具有重要的临床意义。
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