Departement of Oncology, Leicester Royal Infirmary, Leicester, UK.
Eur J Cancer Care (Engl). 2011 Jan;20(1):56-61. doi: 10.1111/j.1365-2354.2009.01156.x.
The primary aim of this study was to assess how patients would prefer to be given their cancer diagnosis in a typical UK cancer centre. Two hundred and forty-four patients attending the oncology outpatient department at the Leicester Royal Infirmary, UK, were recruited. Patients were invited to complete the Measure of Patients' Preferences questionnaire, write comments on their own experience of the breaking bad news consultation and choose their preferred role in decision making. Over 90% of questionnaires were completed. Patients rated the items addressing the message content of the consultation as more important than the facilitative or the supportive aspects. Over 80% of patients wrote a detailed account of their experiences, of which 60% were satisfied with the consultation. Most of the patients who were dissatisfied commented on the unsympathetic or pessimistic manner of the doctor. The majority of patients wanted a collaborative role in decision making. Regarding the cancer diagnosis, the majority of patients have information needs, want to be involved in treatment decisions and know their prognosis. The difficulty for physicians is how to meet individual information needs, give hope, but not deliver unrealistic expectations.
本研究的主要目的是评估在英国典型癌症中心，患者希望以何种方式获知癌症诊断结果。我们招募了 244 名在英国莱斯特皇家医院肿瘤门诊就诊的患者。邀请患者填写患者偏好测量问卷，就他们自己获知坏消息咨询的体验发表评论，并选择他们在决策制定过程中的首选角色。超过 90%的问卷完成了填写。患者认为涉及咨询内容信息的项目比促进或支持方面更重要。超过 80%的患者详细记录了他们的体验，其中 60%对咨询感到满意。大多数不满意的患者对医生的不体贴或悲观态度提出了意见。大多数患者希望在决策制定过程中扮演协作的角色。关于癌症诊断，大多数患者有信息需求，希望参与治疗决策并了解自己的预后。医生的困难在于如何满足个体的信息需求，给予希望，但不给予不切实际的期望。
