Parker P A, Baile W F, de Moor C, Lenzi R, Kudelka A P, Cohen L
Department of Behavioral Science, The University of Texas M. D. Anderson Cancer Center, Houston, TX 77030, USA.
J Clin Oncol. 2001 Apr 1;19(7):2049-56. doi: 10.1200/JCO.2001.19.7.2049.
The goal of this study was to assess patients' preferences regarding the way in which physicians deliver news about their cancer diagnosis and management.
A sample of 351 patients with a variety of cancers completed a measure assessing their preferences for how they would like to be told news about their cancer. Patients rated characteristics of the context and content of the conversation as well as physician characteristics.
Factor analysis indicated that patients' preferences for how they would like to be told news regarding their cancer can be grouped into the following three categories: (1) content (what and how much information is told); (2) facilitation (setting and context variables); and (3) support (emotional support during the interaction). Women (P =.02) and patients with higher education (P =.05) had significantly higher scores on the Content scale, women (P =.02) had higher scores on the Support scale, and younger patients (P =.001) and those with more education (P =.02) had higher scores on the Message Facilitation scale. Medical variables were not associated with patients' ratings of the importance of the three subscales.
Patients rated items addressing the message content as most important, though the supportive and facilitative dimensions were also rated highly. Understanding what is important to patients when told news about their cancer provides valuable information that may help refine how this challenging task is best performed.
本研究的目的是评估患者对于医生告知其癌症诊断及治疗信息方式的偏好。
351名患有各种癌症的患者完成了一项评估,该评估涉及他们希望如何得知自己患癌消息的偏好。患者对谈话的背景和内容特征以及医生特征进行了评分。
因子分析表明,患者对于得知自己患癌消息方式的偏好可分为以下三类:(1) 内容(告知了什么信息以及多少信息);(2) 辅助(环境和背景变量);(3) 支持(互动过程中的情感支持)。女性(P = 0.02)和受过高等教育的患者(P = 0.05)在内容量表上的得分显著更高,女性(P = 0.02)在支持量表上的得分更高,而年轻患者(P = 0.001)和受教育程度更高的患者(P = 0.02)在信息辅助量表上的得分更高。医学变量与患者对这三个子量表重要性的评分无关。
患者认为涉及消息内容的项目最为重要,不过支持性和辅助性维度的评分也很高。了解在告知患者患癌消息时对他们来说重要的因素,能提供有价值的信息,有助于优化如何最好地完成这项具有挑战性的任务。