Department of Nursing, Gjövik University College, P.O. Box 191, N-2802 Gjövik, Norway.
Clin Exp Rheumatol. 2009 Nov-Dec;27(6):1039-46.
The aim was to describe physical and psychosocial health status in a second follow-up of a cohort of patients with chronic childhood arthritis, to compare results from the present study with the first follow-up, and to explore the course of physical and psychosocial functioning from baseline.
At a median of 18.3 years after symptom onset 55 patients answered the self-administered questionnaires Health Assessment Questionnaire Disability Index (HAQ-DI), Visual Analogue Scales (VAS) of pain, fatigue and illness, and General Health Questionnaire (GHQ) 30-item version. Results from the current study were compared to first follow-up median 8.7 years after symptom onset, and the course of physical and psychosocial function from baseline was discussed.
At second follow-up, 38% reported HAQ-DI above 0 indicating physical disability, 22% had a GHQ-30 score in the clinical range indicating psychiatric distress, and fatigue seemed to be an overarching aspect of the health status. Pain was an important correlate of physical disability at first and second follow-up. At second follow-up psychiatric distress was a significant correlate of pain and fatigue, indicating a relation to disease severity. The association between psychosocial functioning and chronic family difficulties observed at first follow-up is not evident at second follow-up.
The favourable physical and psychosocial outcome reported at first follow-up seems to persist. However, arthritis-related ill-health is still evident in a considerable proportion of the patients, indicating a constant impact of the disease on every-day life of the individual.
描述慢性儿童关节炎患者队列的第二次随访中的身体和心理社会健康状况，将本研究的结果与第一次随访进行比较，并探讨从基线开始的身体和心理社会功能的发展过程。
在症状出现后中位数为 18.3 年时，55 名患者回答了自我管理的问卷，包括健康评估问卷残疾指数（HAQ-DI）、疼痛、疲劳和疾病的视觉模拟量表（VAS）以及一般健康问卷（GHQ）30 项版本。将当前研究的结果与症状出现后中位数为 8.7 年的第一次随访进行比较，并讨论身体和心理社会功能从基线开始的发展过程。
在第二次随访中，38%的患者报告 HAQ-DI 高于 0，表明存在身体残疾，22%的患者 GHQ-30 得分处于临床范围，表明存在精神困扰，疲劳似乎是健康状况的一个主要方面。疼痛是第一次和第二次随访中身体残疾的重要相关因素。在第二次随访中，精神困扰是疼痛和疲劳的显著相关因素，表明与疾病严重程度有关。在第一次随访中观察到的心理社会功能与慢性家庭困难之间的关联在第二次随访中并不明显。
在第一次随访中报告的良好的身体和心理社会结果似乎持续存在。然而，关节炎相关的健康问题在相当一部分患者中仍然存在，表明疾病对个体的日常生活仍有持续的影响。
