CRRRF-CHU d'Angers, France.
Ann Phys Rehabil Med. 2010 Mar;53(2):96-104. doi: 10.1016/j.rehab.2010.01.002. Epub 2010 Jan 28.
To determine how many patients in a permanent vegetative state or a minimally conscious state are living in healthcare institutions in the Maine-et-Loire county of western France. To evaluate patient management, physical complications, problems encountered by nursing staff and the patient care teams' wishes.
We performed a cross-sectional, descriptive study in physical medicine and rehabilitation departments, nursing homes, geriatric units and local hospitals. All patients and their medical records were examined by the same investigator. A questionnaire for carers was used to evaluate nursing tasks and a second questionnaire for head nurses served to assess staff needs and the patient care teams' wishes.
Thirteen patients were identified. Four were in a permanent vegetative state and nine were in a minimally conscious state. Ten patients were cared for in geriatric units, one in a physical medicine and rehabilitation department and two in local hospitals. All patients displayed limited joint angle ranges. All the patient care teams reported practical difficulties and ethical issues.
Our survey highlighted the variety of care scenarios for patients in a permanent vegetative state or a minimally conscious state. It revealed practical difficulties and, above all, ethical questions. The present work could serve as a basis for implementation of a recently issued French government circular on defining specific wards for these patients.
确定法国西部曼恩-卢瓦尔省永久性植物状态或最小意识状态患者在医疗机构中的数量。评估患者管理、身体并发症、护理人员遇到的问题以及患者护理团队的愿望。
我们在物理医学和康复科、疗养院、老年科和当地医院进行了一项横断面描述性研究。同一位研究者检查了所有患者及其病历。使用护理人员问卷评估护理任务，使用第二份护士长问卷评估工作人员需求和患者护理团队的愿望。
确定了 13 名患者。其中 4 名处于永久性植物状态，9 名处于最小意识状态。10 名患者在老年科接受治疗，1 名在物理医学和康复科，2 名在当地医院。所有患者的关节活动范围均有限。所有患者护理团队都报告了实际困难和伦理问题。
我们的调查强调了永久性植物状态或最小意识状态患者的各种护理情况。它揭示了实际困难，尤其是伦理问题。目前的工作可以作为实施法国政府最近发布的关于为这些患者定义特定病房的通知的基础。
