溃疡性结肠炎对患者生活的影响与其他慢性病相比：一项患者调查。
The impact of ulcerative colitis on patients' lives compared to other chronic diseases: a patient survey.
机构信息
Section of Gastroenterology, Department of Medicine, University of Chicago Medical Center, 5841 South Maryland Avenue, MC 4076, Chicago, IL, 60637, USA.
出版信息
Dig Dis Sci. 2010 Apr;55(4):1044-52. doi: 10.1007/s10620-009-0953-7. Epub 2009 Sep 4.
PURPOSE
This study was designed to identify the impact chronic ulcerative colitis (UC) has on the lives of patients compared to other chronic conditions. Overall, 451 patients with UC, 309 with rheumatoid arthritis, 305 with asthma, and 305 with migraine headaches were recruited in an Internet survey designed to assess a variety of disease-impact indices.
RESULTS
Patients with UC reported a mean of eight (self-defined) flare-ups in the previous 12 months. Significantly more patients with UC (81%) believed that the quantity of flare-ups they experienced was 'normal', compared to patients with migraine headaches (64%) or asthma (75%). Patients with UC also reported significantly more worry about disease complications (84%), depression (62%), and embarrassment (70%) than patients with the other chronic conditions.
CONCLUSIONS
Compared to patients with other chronic conditions, patients with UC perceive substantially more negative impact upon their lives, especially with regard to the psychological burden.
目的
本研究旨在比较慢性溃疡性结肠炎（UC）与其他慢性疾病对患者生活的影响。采用互联网调查方式，共招募了 451 例 UC 患者、309 例类风湿关节炎患者、305 例哮喘患者和 305 例偏头痛患者，以评估各种疾病影响指标。
结果
UC 患者报告过去 12 个月平均有 8 次（自我定义的）发作。与偏头痛（64%）或哮喘（75%）患者相比，更多 UC 患者（81%）认为他们经历的发作次数“正常”。与其他慢性疾病患者相比，UC 患者还报告了更多对疾病并发症（84%）、抑郁（62%）和尴尬（70%）的担忧。
结论
与患有其他慢性疾病的患者相比，UC 患者认为对他们的生活有更大的负面影响，尤其是在心理负担方面。
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