Kessler Foundation Research Center, West Orange, NJ, USA.
Arch Phys Med Rehabil. 2010 Feb;91(2):252-60. doi: 10.1016/j.apmr.2009.09.022.
To examine the use of an innovative approach for assessing everyday life activities of people with multiple sclerosis (MS): Actual Reality. Actual Reality is a performance-based assessment approach that involves the use of the internet to perform real, everyday life activities.
A between-subjects design.
Outpatient rehabilitation institute.
Persons (n=21) with clinically definite MS and healthy controls (HCs) (n=18) without any reported neurologic disabilities participated in this study. Participants were between the ages of 21 to 60 years, and the sample consisted of volunteer sample.
Not applicable.
Participants were asked to access the internet to purchase airline tickets for a round trip flight and were administered the Minimal Assessment of Cognitive Functioning in Multiple Sclerosis. Participants also completed questionnaires to assess quality of life (Functional Assessment of Multiple Sclerosis), functional status (Functional Behavior Profile), and prior Internet experience.
The MS group displayed significantly more difficulties than the HC group in accurately and independently completing the Actual Reality task primarily because of cognitive impairment. Self-report of quality of life and functional status were not correlated with Actual Reality performance in the group of people with MS. However, the self-report measures were significantly associated with affective symptomatology.
These results provide initial evidence supporting the use of the Actual Reality approach in assessing persons with MS performing everyday life activities. Actual Reality is a significant step forward in increasing the sensitivity, accessibility, and relevancy of functional assessments in people with cognitive and physical disabilities.
考察一种评估多发性硬化症（MS）患者日常生活活动的创新方法——实际现实的应用：实际现实是一种基于表现的评估方法，涉及使用互联网来执行真实的日常活动。
受试者间设计。
门诊康复研究所。
本研究纳入了 21 名临床确诊的多发性硬化症患者和 18 名无任何报告的神经功能障碍的健康对照者（HCs）。参与者年龄在 21 至 60 岁之间，样本由志愿者组成。
不适用。
参与者被要求上网购买往返机票，并进行多发性硬化症认知功能最小评估。参与者还完成了评估生活质量（多发性硬化症功能评估）、功能状态（功能行为特征）和先前互联网经验的问卷。
MS 组在准确和独立完成实际现实任务方面明显比 HC 组困难，主要是因为认知障碍。MS 组的生活质量和功能状态的自我报告与实际现实表现无关。然而，自我报告的测量指标与情感症状显著相关。
这些结果初步支持了在评估多发性硬化症患者进行日常活动时使用实际现实方法。实际现实是在提高认知和身体残疾患者功能评估的敏感性、可及性和相关性方面迈出的重要一步。
