George Sheba, Garth Belinda, Wohl Amy Rock, Galvan Frank H, Garland Wendy, Myers Hector F
Biomedical Research Center, Charles Drew University of Medicine and Science, Los Angeles, CA, USA.
J Health Care Poor Underserved. 2009 Nov;20(4):1012-35. doi: 10.1353/hpu.0.0210.
The change in HIV from acute to chronic disease due to the introduction of HAART in the mid-1990s increased the importance of its successful management and imposed substantial lifestyle adjustments on HIV-positive people and their support networks. Few studies have examined the sources and types of social support and the areas of care relevant for engagement in HIV treatment among HIV-positive Latinos and African Americans. This paper reports the results of 24 semi-structured in-depth interviews that were conducted with HIV-positive African American and Latino women and men who have sex with men. Formal networks were found to be more critical for engagement in HIV-specific medical care; specifically, study participants relied primarily on health care providers for support in accessing and maintaining illness-specific care. In contrast, informal networks (family and friends) were crucial for other general subsistence care, such as emotional, household-related, and financial support.
由于20世纪90年代中期高效抗逆转录病毒治疗（HAART）的引入，艾滋病病毒从急性疾病转变为慢性疾病，这增加了成功管理艾滋病病毒的重要性，并给艾滋病病毒呈阳性的人群及其支持网络带来了重大的生活方式调整。很少有研究探讨社会支持的来源和类型，以及与艾滋病病毒呈阳性的拉丁裔和非裔美国人参与艾滋病病毒治疗相关的护理领域。本文报告了对与男性发生性关系的艾滋病病毒呈阳性的非裔美国人和拉丁裔女性及男性进行的24次半结构化深度访谈的结果。研究发现，正式网络对于参与特定艾滋病病毒医疗护理更为关键；具体而言，研究参与者主要依靠医疗保健提供者来获得和维持针对特定疾病的护理支持。相比之下，非正式网络（家人和朋友）对于其他一般生活维持护理至关重要，比如情感、家庭相关和经济支持。
