Department of Social Work, Umeå University, Sweden.
Adv Ther. 2010 Jan;27(1):17-27. doi: 10.1007/s12325-010-0003-z. Epub 2010 Feb 18.
Brain tumors have special oncological significance. The prognosis of brain tumors is mostly poor, and they are also connected to functional and cognitive deficiencies, as well as possible personality changes. Therefore, the social impact of the disease has special significance as it also affects family and friends of patients with brain tumors. This review focuses on different professional arenas that can psychologically facilitate for the patient and/or for their next of kin. The different arenas discussed are: the patient-physician relationship, the specialist nurse function, functional and cognitive rehabilitative efforts, and support groups. The patient-physician relationship is important, but there is a lack of knowledge of its psychological impact outside of information giving. The few studies conducted on the specialist nurse function are quite unanimous about its facilitating value and this mainly seems to pertain to the next of kin. Functional rehabilitative efforts seem to be worthy, but even if there are promising results, there is still lack of knowledge of the potential of cognitive rehabilitation. Although there is a long history of peer support groups for patients with brain tumors, we do not know enough about the potential in professionally initiated supportive groups or different Internet forums. When initiating further studies within the different arenas for the purpose of understanding how to facilitate for patients with brain tumors and their families, we should also consider the psychological meaning of the activity/intervention.
脑肿瘤具有特殊的肿瘤学意义。脑肿瘤的预后大多较差,且常伴有功能和认知缺陷,以及可能的人格改变。因此,该疾病的社会影响具有特殊意义,因为它也会影响脑肿瘤患者的家属和朋友。本综述聚焦于不同的专业领域,这些领域可以为患者及其家属提供心理上的帮助。讨论的不同领域包括:医患关系、专科护士的作用、功能和认知康复以及支持小组。医患关系很重要,但除了提供信息外,人们对其心理影响知之甚少。对专科护士功能进行的为数不多的研究非常一致地认为它具有促进作用,这主要适用于家属。功能康复似乎是有价值的,但即使有有希望的结果,认知康复的潜力仍知之甚少。尽管脑肿瘤患者的同伴支持小组已有很长的历史,但我们对专业发起的支持小组或不同的互联网论坛的潜力了解不足。在不同领域开展进一步研究以了解如何为脑肿瘤患者及其家属提供帮助时,我们还应考虑活动/干预的心理意义。