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患者决策辅助研究中的理性缺失:清单是否会损害知情选择干预的质量?

The loss of reason in patient decision aid research: do checklists damage the quality of informed choice interventions?

机构信息

Research About Patients Informed Decisions (R.A.P.I.D.) Group, Leeds Institute of Health Sciences, School of Medicine, University of Leeds, Leeds, UK.

出版信息

Patient Educ Couns. 2010 Mar;78(3):357-64. doi: 10.1016/j.pec.2010.01.002. Epub 2010 Feb 19.

DOI:10.1016/j.pec.2010.01.002
PMID:20171821
Abstract

OBJECTIVE

To discuss whether using the International Patient Decision Aids Standards (IPDAS) Collaboration checklist as a gold standard to judge interventions' quality is premature and potentially detrimental to the validity of resources designed to help patients make treatment choices.

METHODS

Conceptual review integrating the science behind individuals' decision making with the demands of designing complex, healthcare interventions.

RESULTS

Patient decision aids are promoted as interventions to help professionals engage in shared and/or patient-centred care. The IPDAS domains were informed by experts' opinions of best practice. Decision scientists study how individuals make decisions, what biases their choices and how best to support decisions. There is debate from decision scientists about which component parts are the active ingredients that help people make decisions.

CONCLUSIONS

Interventions to help patients make choices have different purposes, component parts and outcomes to those facilitating professional-patient communications. The IPDAS checklist will change to respond to new evidence from the decision sciences.

PRACTICE IMPLICATIONS

Adhering uncritically to the IPDAS checklist may reduce service variation but is not sufficient to ensure interventions enable good patient decision making. Developers must be encouraged to reason about the IPDAS checklist to identify those component parts that do (not) meet their intervention's purpose.

摘要

目的

讨论使用国际患者决策辅助标准(IPDAS)协作清单作为判断干预措施质量的金标准是否为时过早,并且可能对旨在帮助患者做出治疗选择的资源的有效性产生不利影响。

方法

概念综述,将个体决策背后的科学与设计复杂医疗干预措施的需求相结合。

结果

患者决策辅助工具被宣传为帮助专业人员进行共同和/或以患者为中心的护理的干预措施。IPDAS 领域是由专家对最佳实践的意见提供信息的。决策科学家研究个人如何做出决策、他们的选择存在哪些偏见以及如何最好地支持决策。决策科学家对哪些组成部分是帮助人们做出决策的有效成分存在争议。

结论

帮助患者做出选择的干预措施与促进专业人员与患者沟通的干预措施具有不同的目的、组成部分和结果。IPDAS 清单将根据决策科学的新证据进行更改。

实践意义

盲目遵循 IPDAS 清单可能会减少服务差异,但不足以确保干预措施能够促进良好的患者决策。必须鼓励开发人员对 IPDAS 清单进行推理,以确定那些符合(不符合)干预措施目的的组成部分。

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