Denier Yvonne
Center for Biomedical Ethics and Law, Catholic University of Leuven, Kapucijnenvoer 35, Block D, Box 7001, 3000 Leuven, Belgium.
J Med Philos. 2010 Apr;35(2):101-29. doi: 10.1093/jmp/jhq007. Epub 2010 Feb 24.
The structure of our ethical experience depends, crucially, on a fundamental distinction between what we are responsible for doing or deciding and what is given to us. As such, the boundary between chance and choice is the spine of our conventional morality, and any serious shift in that boundary is thoroughly dislocating. Against this background, I analyze the way in which techniques of prenatal genetic diagnosis (PGD) pose such a fundamental challenge to our conventional ideas of justice and moral responsibility. After a short description of the situation, I first examine the influential luck egalitarian theory of justice, which is based on the distinction between choice and luck or, more specifically, between option luck and brute luck, and the way in which it would approach PGD (section II), followed by an analysis of the conceptual incoherencies (in section III) and moral problems (in section IV) that come with such an approach. Put shortly, the case of PGD shows that the luck egalitarian approach fails to express equal respect for the individual choices of people. The paradox of the matter is that by overemphasizing the fact of choice as such, without regard for the social framework in which they are being made, or for the fundamental and existential nature of particular choices-like choosing to have children and not to undergo PGD or not to abort a handicapped fetus-such choices actually become impossible.
我们道德体验的结构关键取决于一个基本区分,即我们对自己所做之事或所做决定负责的部分与那些既定之事之间的区分。因此,机遇与选择之间的界限是我们传统道德的核心,而该界限的任何重大转变都会彻底扰乱我们的道德观念。在此背景下,我分析产前基因诊断(PGD)技术对我们传统的正义观念和道德责任观念构成根本性挑战的方式。在简要描述情况之后,我首先考察有影响力的运气平等主义正义理论,该理论基于选择与运气之间的区分,或者更具体地说,基于选项运气与原生运气之间的区分,以及它处理PGD问题的方式(第二节),随后分析这种方法所带来的概念不连贯性(第三节)和道德问题(第四节)。简而言之,PGD的案例表明,运气平等主义方法未能表达对人们个体选择的平等尊重。此事的悖论在于,通过过度强调选择本身这一事实,而不考虑做出选择的社会框架,也不考虑特定选择(如选择生育孩子、不接受PGD或不堕胎有缺陷胎儿)的根本性质和存在本质,这样的选择实际上变得不可能。