Whittemore Robin, Grey Margaret, Lindemann Evie, Ambrosino Jodie, Jaser Sarah
Yale School of Nursing, New Haven, CT 06536-0740, USA.
Comput Inform Nurs. 2010 Mar-Apr;28(2):103-11. doi: 10.1097/NCN.0b013e3181cd8199.
The purpose of this study was to develop an Internet coping skills training program and to evaluate its feasibility and acceptability compared with an Internet education intervention for teenagers with type 1 diabetes. A multiphase mixed-methods design with focus groups, a randomized pilot study, and a program evaluation was used. Teenagers with type 1 diabetes, parents, and health professionals were included in the development and evaluative phases along with the research and information technology team. The pilot study included 12 teenagers with type 1 diabetes (mean [SD] age, 14.4 [.90] years; 58% female; mean [SD] duration of diabetes, 5.9 [3.0] years). Psychosocial data and HbA1c levels were collected at baseline and at 3 and 6 months. Results indicate that the development of a psychosocial Internet intervention was complex and required multiple iterations of development and evaluation. Results of this study also indicate the feasibility and acceptability of translating a group-based intervention for teenagers with type 1 diabetes to the Internet. Thus, this study demonstrates a systematic approach to Internet intervention development. Including teenagers with type 1 diabetes and a multidisciplinary professional team into the intervention design was critical to the success of this project.
本研究的目的是开发一个互联网应对技能培训项目，并与针对1型糖尿病青少年的互联网教育干预措施相比，评估其可行性和可接受性。采用了包含焦点小组、随机试点研究和项目评估的多阶段混合方法设计。1型糖尿病青少年、家长和健康专业人员与研究及信息技术团队一起参与了开发和评估阶段。试点研究纳入了12名1型糖尿病青少年（平均[标准差]年龄为14.4[0.90]岁；58%为女性；糖尿病平均[标准差]病程为5.9[3.0]年）。在基线、3个月和6个月时收集心理社会数据和糖化血红蛋白（HbA1c）水平。结果表明，心理社会互联网干预措施的开发很复杂，需要多次进行开发和评估迭代。本研究结果还表明，将针对1型糖尿病青少年的基于小组的干预措施转化到互联网上是可行且可接受的。因此，本研究展示了一种系统的互联网干预开发方法。将1型糖尿病青少年和多学科专业团队纳入干预设计对本项目的成功至关重要。
