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在收入动态面板研究中收集生物测量数据:伦理与法律问题

Collecting biomeasures in the Panel Study of Income Dynamics: ethical and legal concerns.

作者信息

Greely Henry T

机构信息

Stanford Law School, Stanford University, Stanford, California 94305-8610, USA.

出版信息

Biodemography Soc Biol. 2009;55(2):270-88. doi: 10.1080/19485560903382452.

Abstract

As social surveys like the Panel Study of Income Dynamics (PSID) consider adding biomeasures to their data collections, they will face complicated ethical, legal, and practical issues. Both fairly and not, research participants are likely to be more concerned about their biomeasures than about their social data. This heightened concern will force investigators to pay more attention to difficult issues such as the research participant's control over subsequent uses of the samples or data, the participant's right to withdraw from the project, protection of the research participant's privacy, return to the participant of important risk information gained through the research, some special issues involving children and families, and the process of informed consent. Investigators can navigate these issues successfully, but the effort will demand time, careful thought, and attention.

摘要

随着像收入动态跟踪调查(PSID)这样的社会调查考虑在其数据收集中增加生物测量指标,它们将面临复杂的伦理、法律和实际问题。无论公平与否,研究参与者可能对其生物测量指标比对其社会数据更为关注。这种更高的关注度将迫使研究人员更加关注一些棘手问题,比如研究参与者对样本或数据后续使用的控制权、参与者退出项目的权利、研究参与者隐私的保护、将通过研究获得的重要风险信息反馈给参与者、一些涉及儿童和家庭的特殊问题以及知情同意的过程。研究人员能够成功应对这些问题,但这需要时间、深思熟虑和关注。

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