Fainardi Valentina, Capoferri Gaia, Tornesello Marco, Pisi Giovanna, Esposito Susanna
Cystic Fibrosis Unit, Pediatric Clinic, Department of Medicine and Surgery, University Hospital of Parma, 43126 Parma, Italy.
J Pers Med. 2023 Jun 25;13(7):1041. doi: 10.3390/jpm13071041.
The care of cystic fibrosis (CF) traditionally consists of regular visits to the clinic where a multidisciplinary team can visit the patient, adjust treatments and monitor the disease. During the COVID-19 pandemic when access to hospitals and medical environments was very limited, the role of telemedicine was crucial to keep in touch with patients with chronic diseases such as CF. Increasing evidence demonstrates that electronic health can successfully support healthcare professionals in the management of people with CF. The use of devices connected to digital platforms or smartphones results in a continuous flow of data that can be shared with the clinician and the team in order to improve the knowledge of patients' diseases and the level of care needed. This narrative review aims to describe the application of telemedicine in CF disease with pros and cons. A literature analysis showed that telemedicine has several advantages in the management of patients with CF. With the evolving support of digital technology, telemedicine can promote clinical visits, adherence to daily treatment, including respiratory physiotherapy and physical exercise, early identification of pulmonary exacerbations and management of psychological issues. The main disadvantages are missed physical exam findings, lack of physical contact that can prevent conversation on sensitive topics, lack of access to technology and lack of technological skills. Furthermore, healthcare operators need appropriate training for telemedicine systems and need time to organise and analyse data generated remotely, which may increase the burden of daily work. Hybrid personalised care models that marge telemedicine and traditional care can be an ideal solution.
传统上,囊性纤维化(CF)的护理包括定期到诊所就诊,多学科团队可以在那里诊治患者、调整治疗方案并监测病情。在新冠疫情期间,进入医院和医疗场所的机会非常有限,远程医疗在与CF等慢性病患者保持联系方面发挥了关键作用。越来越多的证据表明,电子健康能够成功支持医疗专业人员对CF患者的管理。使用连接到数字平台或智能手机的设备可产生连续的数据流,这些数据可与临床医生和团队共享,以增进对患者病情的了解以及所需护理的水平。本叙述性综述旨在描述远程医疗在CF疾病中的应用及其利弊。文献分析表明,远程医疗在CF患者管理方面具有若干优势。随着数字技术支持的不断发展,远程医疗可促进临床问诊、提高对日常治疗(包括呼吸物理治疗和体育锻炼)的依从性、早期识别肺部病情加重以及处理心理问题。主要缺点包括错过体格检查结果、缺乏身体接触(这可能妨碍就敏感话题进行交流)、无法使用技术以及缺乏技术技能。此外,医疗保健人员需要接受远程医疗系统的适当培训,并且需要时间来整理和分析远程生成的数据,这可能会增加日常工作负担。将远程医疗与传统护理相结合的混合个性化护理模式可能是理想的解决方案。