呼吸困难的体验：慢性阻塞性肺疾病的社会病程。
The experience of breathlessness: the social course of chronic obstructive pulmonary disease.
机构信息
Palliative Care Policy & Rehabilitation, School of Medicine, King's College London, London, United Kingdom.
出版信息
J Pain Symptom Manage. 2010 Mar;39(3):555-63. doi: 10.1016/j.jpainsymman.2009.08.009.
CONTEXT
There is a trend toward extending palliative care to nonmalignant diseases. There is no evidence that chronic obstructive pulmonary disease (COPD) requires its own model.
OBJECTIVES
The aim of this study was to investigate how the experience of breathlessness in COPD influences patients' attitudes toward the end of life and their quality of life.
METHODS
Eighteen patients were purposively sampled. Data were collected through in-depth interviews and participant observation during outpatient consultations. Narrative methods were used to analyze the data.
RESULTS
Treatment-seeking in COPD deviated from prototypical trajectories. Contact with health care was postponed to crisis point. Treatment did not follow diagnosis because of how the diagnosis was given. Help was sought when the symptom had acquired meaning in a person's life. The future did not feature in the interviews.
CONCLUSION
Good communication practices are fundamental in the care for COPD patients. Particularly, diagnosis and prognosis need to be rethought in a model to suit the condition of COPD.
背景
姑息治疗的应用范围正在向非恶性疾病扩展。目前尚无证据表明慢性阻塞性肺疾病（COPD）需要有自己的治疗模式。
目的
本研究旨在探讨 COPD 患者呼吸困难的体验如何影响他们对生命终末期的态度和生活质量。
方法
采用目的抽样法选取了 18 名患者。数据收集通过在门诊咨询期间进行深入访谈和参与式观察。采用叙述方法对数据进行分析。
结果
COPD 的治疗寻求偏离了典型的轨迹。与医疗保健的接触被推迟到危机点。由于诊断的方式，治疗并没有遵循诊断。当症状在一个人的生活中具有意义时，才会寻求帮助。未来在访谈中并未涉及。
结论
良好的沟通实践是 COPD 患者护理的基础。特别是，需要在适合 COPD 病情的模式中重新考虑诊断和预后。
Zotero 插件