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在重度慢性阻塞性肺疾病中整合姑息治疗

Integrating palliative care in severe chronic obstructive lung disease.

作者信息

Hardin Kimberly A, Meyers Frederick, Louie Samuel

机构信息

Department of Internal Medicine, UCD Health System Pulmonary Rehabilitation Program, University of California, Davis, Sacramento, CA 95817, USA.

出版信息

COPD. 2008 Aug;5(4):207-20. doi: 10.1080/15412550802237366.

Abstract

Palliative care services for patients with chronic obstructive pulmonary disease (COPD) have been limited in most health care schemes despite the significant impact its symptoms can have on quality of life (QOL). Palliative care must be integrated to address physical and emotional distress and QOL deterioration more effectively. Multi-factorial barriers in current health care systems impede the provision of palliative care, including the lack of familiarity among health care professionals. There are sparse evidence-based studies and guidelines for clinicians to better recognize the need for palliative care in COPD patients compared to the large experience and resources available to cancer patients and hospice care. The multidisciplinary approach of palliative care should help COPD patients navigate through the continuum of chronic disease management. Highest QOL, not necessarily the highest physiologic goals, with relief of physical and emotional suffering, are most important to patients. Hospice care, the last phase of palliative care, can be offered to COPD patients when their goal of care has changed from life-prolonging therapies to comfort treatment. We suggest a scheme for identifying COPD patients for palliative care and for delivering simultaneous disease-directed care to help patients live life to the fullest. Pulmonary rehabilitation offers the best venue for incorporating palliative care. We review the need for, barriers to, and key activities for integrating palliative care into the current health care management of patients living with COPD.

摘要

尽管慢性阻塞性肺疾病(COPD)患者的症状会对生活质量(QOL)产生重大影响,但在大多数医疗保健计划中,针对该疾病患者的姑息治疗服务仍然有限。必须将姑息治疗整合起来,以便更有效地解决身体和情绪困扰以及生活质量恶化的问题。当前医疗保健系统中的多因素障碍阻碍了姑息治疗的提供,包括医疗保健专业人员缺乏相关认识。与癌症患者和临终关怀可利用的大量经验和资源相比,针对临床医生更好地认识COPD患者对姑息治疗需求的循证研究和指南较为匮乏。姑息治疗的多学科方法应有助于COPD患者在慢性病管理的连续过程中顺利应对。对患者而言,最重要的是实现最高生活质量,不一定是最高生理目标,并缓解身体和情感痛苦。当COPD患者的护理目标从延长生命的治疗转变为舒适治疗时,可以为他们提供临终关怀,这是姑息治疗的最后阶段。我们提出了一个方案,用于识别适合接受姑息治疗的COPD患者,并同时提供针对疾病的治疗,以帮助患者充分享受生活。肺康复为纳入姑息治疗提供了最佳场所。我们回顾了将姑息治疗纳入当前COPD患者医疗保健管理的必要性、障碍和关键活动。

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