Stamm T
Klinische Abteilung für Rheumatologie, Universitätsklinik für Innere Medizin III, Medizinische Universität Wien, Währinger Gürtel 18-20, 1090 Wien, Osterreich.
Z Rheumatol. 2010 May;69(3):198-202. doi: 10.1007/s00393-009-0573-9.
In order to measure therapeutic effects or assess disease course, outcomes measurement parameters are commonly used in patients with rheumatoid arthritis. From the patient's perspective, possibly the most important outcome measurement parameter is quality of life (QoL). QoL may be defined in terms of "health status" and "functioning in daily life". According to the WHO, quality of life is defined as the satisfaction of a patient/person with their situation in terms of health status and their ability to function in daily life. Since assessing QoL makes sense only from the patient's perspective, generic or disease-specific questionnaires are usually used. For rheumatoid arthritis, multiple questionnaires which can be used in a routine clinical setting are available. In addition, QoL is a highly subjective concept and can depend on a variety of individual factors. Thus, measurement of QoL using the profiles and indices of common instruments cannot fully account for an individual's perspective.
为了衡量治疗效果或评估疾病进程，类风湿关节炎患者通常会使用疗效测量参数。从患者的角度来看，可能最重要的疗效测量参数是生活质量（QoL）。生活质量可以根据“健康状况”和“日常生活功能”来定义。根据世界卫生组织的定义，生活质量是指患者/个人对其健康状况及日常生活功能的满意度。由于只有从患者的角度评估生活质量才有意义，因此通常会使用通用或特定疾病的调查问卷。对于类风湿关节炎，有多种可在常规临床环境中使用的调查问卷。此外，生活质量是一个高度主观的概念，可能取决于多种个体因素。因此，使用常用工具的概况和指数来测量生活质量并不能完全体现个人的观点。
