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有机会深入了解“反应转移”,并教育研究人员如何设计高质量的研究:回应乌贝尔、皮特尔斯和史密斯。

An opportunity to refine our understanding of "response shift" and to educate researchers on designing quality research studies: response to Ubel, Peeters, and Smith.

机构信息

Outcomes Research Branch, Applied Research Program, Division of Cancer Control and Population Sciences, National Cancer Institute, EPN 4088, 6130 Executive Blvd., MSC 7344, Bethesda, MD 20892-7344, USA.

出版信息

Qual Life Res. 2010 May;19(4):473-5. doi: 10.1007/s11136-010-9612-x. Epub 2010 Mar 25.

DOI:10.1007/s11136-010-9612-x
PMID:20336490
Abstract

There is no advantage at this time to abandon the term "response shift" as suggested by Ubel et al. (Qual Life Res, 2010). The term is well known in the research field and has impacted the way we think about measuring quality of life (QOL) longitudinally. However, Ubel et al. (Qual Life Res, 2010) have provided the incentive to start an open dialogue on the subject with opportunities to refine the language of response shift and educate researchers. In this article, we identify opportunities in designing research studies to minimize or account for response shifts by considering the (1) selection of QOL concepts to measure, (2) questionnaires used to assess the QOL concepts, (3) design of the research study, (4) target population, and (5) analyses and reporting of results. Careful consideration of each of these issues will help us identify new methodologies and improved study designs that will move the QOL research field forward.

摘要

目前,尚不宜如 Ubel 等人(Qual Life Res,2010)所建议的那样摒弃“反应转移”这一术语。该术语在研究领域广为人知,并影响了我们对纵向测量生命质量(QOL)的方式的思考。然而,Ubel 等人(Qual Life Res,2010)已经提供了一个契机,让我们就这一主题展开公开对话,有机会完善反应转移的语言,并对研究人员进行教育。在本文中,我们确定了在设计研究时通过以下方式来最小化或考虑反应转移的机会:(1)选择要测量的 QOL 概念,(2)用于评估 QOL 概念的问卷,(3)研究设计,(4)目标人群,以及(5)分析和报告结果。仔细考虑这些问题中的每一个问题,将有助于我们确定新的方法和改进的研究设计,从而推动 QOL 研究领域的发展。

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本文引用的文献

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Do not throw out the baby with the bath water: build on current approaches to realize conceptual clarity. Response to Ubel, Peeters, and Smith.不要因噎废食:在现有方法的基础上实现概念清晰。对乌贝尔、皮特斯和史密斯的回应。
Qual Life Res. 2010 May;19(4):477-9. doi: 10.1007/s11136-010-9611-y. Epub 2010 Mar 25.
2
Abandoning the language of "response shift": a plea for conceptual clarity in distinguishing scale recalibration from true changes in quality of life.摒弃“反应转移”的语言:呼吁在区分量表重新校准与生活质量真正变化时概念清晰。
Qual Life Res. 2010 May;19(4):465-71. doi: 10.1007/s11136-010-9592-x. Epub 2010 Jan 29.
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Adv Methods Pract Psychol Sci. 2021 Apr-Jun;4(2). doi: 10.1177/25152459211012271. Epub 2021 May 13.
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Response shift in patient-reported outcomes: definition, theory, and a revised model.患者报告结局中的反应转移:定义、理论和修正模型。
Qual Life Res. 2021 Dec;30(12):3309-3322. doi: 10.1007/s11136-021-02846-w. Epub 2021 Apr 28.
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Response shift in results of patient-reported outcome measures: a commentary to The Response Shift-in Sync Working Group initiative.患者报告结局测量结果中的反应转移:对《反应转移同步工作组倡议》的评论。
Qual Life Res. 2021 Dec;30(12):3299-3308. doi: 10.1007/s11136-020-02747-4. Epub 2021 Jan 22.
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Anticipated adaptation or scale recalibration?预期的调整或重新校准?
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