McMillan Carolyn V, Honeyford Rachel J, Datta Jessica, Madge Nicola J H, Bradley Clare
Department of Psychology, Royal Holloway, University of London, Egham, Surrey, TW20 0EX, UK.
Health Qual Life Outcomes. 2004 Nov 9;2:61. doi: 10.1186/1477-7525-2-61.
This study evaluated the psychometric properties of the ADDQoL-Teen, an innovative individualised, patient-centred questionnaire measuring perceived impact of diabetes mellitus on quality of life (QoL) of teenagers. Respondents rate all 30 life domains for frequency, and personally applicable domains for 'bother'. Two overview items measure present QoL and diabetes-dependent QoL. ADDQoL-Teen design was based on the ADDQoL (for adults with diabetes).
Interviews and discussion groups were conducted with 23 teenagers aged 13-16 years, during work to design the ADDQoL-Teen. The new questionnaire was then completed by 152 young people, (mean age 16.4 +/- 2.4 years), attending diabetes clinics at six UK centres.
Five domains detracted from the measure's reliability and factor structure, four of which were analysed separately and one deleted. The 25-domain ADDQoL-Teen had high internal consistency reliability [Cronbach's alpha = 0.91, (N = 133)] and could be summed into an overall Average Weighted Impact score. There were two subscales: a 10-item Impact-Self subscale (measuring impact of diabetes and its treatment on the individual) and a 15-item Impact-Other subscale (measuring impact on interactions with others and the external world). Both subscales had good internal consistency reliability, [Cronbach's alpha coefficients of 0.82 (N = 142) and 0.88 (N = 138) respectively]. Domains reported as most severely (and negatively) impacted by diabetes were (mean weighted impact +/- SD): lie in bed (-3.68 +/- 3.41), interrupting activities (-3.5 +/- 3.23), worry about the future (-3.45 +/- 3.28), career (-3.43 +/- 3.15) and sweets (-3.24 +/- 3.24), (maximum range -9 to +3). Analysis of the overview items showed that although 72.5% considered that their present QoL was good or brilliant, 61.8% felt that having diabetes had a negative impact on QoL, but 35.6% reported no impact and 2.6% reported a positive impact on QoL.
The ADDQoL-Teen is a new measure of perceived impact of diabetes and its treatment on QoL of teenagers. It will help healthcare professionals and parents consider QoL issues as well as medical outcomes when caring for young people with diabetes. It may be used in clinical trials and for routine clinical monitoring in a context of continuing evaluation.
本研究评估了青少年糖尿病生活质量问卷（ADDQoL-Teen）的心理测量特性，这是一种创新的个体化、以患者为中心的问卷，用于测量糖尿病对青少年生活质量（QoL）的感知影响。受访者对所有30个生活领域的频率进行评分，并对个人适用的领域进行“困扰”评分。两个概述项目测量当前生活质量和糖尿病相关生活质量。ADDQoL-Teen的设计基于ADDQoL（针对成年糖尿病患者）。
在设计ADDQoL-Teen的过程中，对23名13至16岁的青少年进行了访谈和小组讨论。然后，152名年轻人（平均年龄16.4±2.4岁）完成了这份新问卷，他们在英国六个中心的糖尿病诊所就诊。
五个领域影响了该测量方法的可靠性和因子结构，其中四个进行了单独分析，一个被删除。25个领域的ADDQoL-Teen具有较高的内部一致性可靠性[克朗巴赫α系数=0.91，（N = 133）]，可以汇总为一个总体平均加权影响得分。有两个子量表：一个10项的自我影响子量表（测量糖尿病及其治疗对个体的影响）和一个15项的他人影响子量表（测量对与他人及外部世界互动的影响）。两个子量表都具有良好的内部一致性可靠性，[克朗巴赫α系数分别为0.82（N = 142）和0.88（N = 138）]。报告受糖尿病影响最严重（且为负面）的领域为（平均加权影响±标准差）：躺在床上（-3.68±3.41）、中断活动（-3.5±3.23）、担心未来（-3.45±3.28）、职业（-3.43±3.15）和甜食（-3.24±3.24），（最大范围-9至+3）。对概述项目的分析表明，尽管72.5%的人认为他们目前的生活质量良好或出色，但61.8%的人认为患有糖尿病对生活质量有负面影响，但35.6%的人报告没有影响，2.6%的人报告对生活质量有正面影响。
ADDQoL-Teen是一种测量糖尿病及其治疗对青少年生活质量感知影响的新方法。它将有助于医疗保健专业人员和家长在照顾糖尿病青少年时，除了考虑医疗结果外，还能考虑生活质量问题。它可用于临床试验以及在持续评估的背景下进行常规临床监测。
