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Planning the specialized care of adult congenital heart disease patients: from numbers to guidelines; an epidemiologic approach.规划成人先天性心脏病患者的专科护理:从数据到指南;一种流行病学方法。
Am Heart J. 2009 Jan;157(1):1-8. doi: 10.1016/j.ahj.2008.08.029. Epub 2008 Nov 17.
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ACC/AHA 2008 Guidelines for the Management of Adults with Congenital Heart Disease: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (writing committee to develop guidelines on the management of adults with congenital heart disease).《美国心脏病学会/美国心脏协会2008年成人先天性心脏病管理指南》:美国心脏病学会/美国心脏协会实践指南工作组(制定成人先天性心脏病管理指南的写作委员会)报告
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ACC/AHA 2008 Guideline update on valvular heart disease: focused update on infective endocarditis: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines endorsed by the Society of Cardiovascular Anesthesiologists, Society for Cardiovascular Angiography and Interventions, and Society of Thoracic Surgeons.美国心脏病学会/美国心脏协会2008年心脏瓣膜病指南更新:感染性心内膜炎重点更新:美国心脏病学会/美国心脏协会实践指南工作组报告,得到心血管麻醉医师协会、心血管造影和介入学会以及胸外科医师协会认可。
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Genetic basis for congenital heart defects: current knowledge: a scientific statement from the American Heart Association Congenital Cardiac Defects Committee, Council on Cardiovascular Disease in the Young: endorsed by the American Academy of Pediatrics.先天性心脏病的遗传基础:当前认知:美国心脏协会先天性心脏缺陷委员会、青少年心血管疾病理事会的科学声明:获美国儿科学会认可
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Prevention of infective endocarditis: guidelines from the American Heart Association: a guideline from the American Heart Association Rheumatic Fever, Endocarditis, and Kawasaki Disease Committee, Council on Cardiovascular Disease in the Young, and the Council on Clinical Cardiology, Council on Cardiovascular Surgery and Anesthesia, and the Quality of Care and Outcomes Research Interdisciplinary Working Group.感染性心内膜炎的预防:美国心脏协会指南:美国心脏协会风湿热、心内膜炎及川崎病委员会、青年心血管疾病理事会、临床心脏病学理事会、心血管外科和麻醉理事会以及医疗质量与结果研究跨学科工作组制定的指南
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Health care resource utilization in adults with congenital heart disease.先天性心脏病成人患者的医疗资源利用情况。
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Changes in hospitalization patterns among patients with congenital heart disease during the transition from adolescence to adulthood.先天性心脏病患者从青少年期到成年期过渡期间住院模式的变化。
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Congenital heart disease in the general population: changing prevalence and age distribution.普通人群中的先天性心脏病:患病率及年龄分布的变化
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Preimplantation genetic diagnosis and screening.植入前基因诊断与筛查
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加拿大心血管学会 2009 年共识会议关于成人先天性心脏病管理:引言。

Canadian Cardiovascular Society 2009 Consensus Conference on the management of adults with congenital heart disease: introduction.

机构信息

McGill Adult Unit for Congenital Heart Disease Excellence, McGill University, Montreal, Quebec.

出版信息

Can J Cardiol. 2010 Mar;26(3):e65-9. doi: 10.1016/s0828-282x(10)70353-6.

DOI:10.1016/s0828-282x(10)70353-6
PMID:20352136
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2851470/
Abstract

With advances in pediatric cardiology and cardiac surgery, the population of adults with congenital heart disease (CHD) has increased. In the current era, there are more adults with CHD than children. This population has many unique issues and needs. Since the 2001 Canadian Cardiovascular Society consensus conference report on the management of adults with CHD, there have been significant advances in the field of adult CHD. Therefore, new clinical guidelines have been written by Canadian adult CHD physicians in collaboration with an international panel of experts in the field. The present introductory section is a summary of the epidemiology and scope of adult CHD in Canada, the structure of the Canadian health care system and adult congenital cardiac health services in Canada. The recommendations for antibiotic prophylaxis and genetic evaluation in this population are included. The complete document consists of four manuscripts, which are published online in the present issue of The Canadian Journal of Cardiology, including sections on genetics, outcomes, diagnostic workups, surgical and interventional options, treatment of arrhythmias, assessment of pregnancy and contraception risks, and follow-up recommendations. The complete document and references can also be found at www.ccs.ca or www.cachnet.org.

摘要

随着儿科心脏病学和心脏外科学的进步,先天性心脏病 (CHD) 成人患者的数量有所增加。在当前时代,患有 CHD 的成年人比儿童多。这一人群有许多独特的问题和需求。自 2001 年加拿大心血管学会关于成人 CHD 管理的共识会议报告以来,成人 CHD 领域取得了重大进展。因此,加拿大成人 CHD 医生与该领域的国际专家小组合作编写了新的临床指南。本介绍性部分概述了加拿大成人 CHD 的流行病学和范围、加拿大医疗保健系统的结构以及加拿大成人先天性心脏保健服务。本指南还包括了针对该人群的抗生素预防和基因评估建议。完整文件由四篇论文组成,发表在本期《加拿大心脏病学杂志》的网络版上,包括遗传学、结局、诊断评估、手术和介入选择、心律失常治疗、妊娠和避孕风险评估以及随访建议等部分。完整文件和参考文献也可以在 www.ccs.ca 或 www.cachnet.org 上找到。