Röding Jenny, Lindström Britta, Malm Jan, Ohman Ann
Department of Community Medicine and Rehabilitation, Umeå University, Sweden.
Disabil Rehabil. 2003 Aug 5;25(15):867-74. doi: 10.1080/0963828031000122276.
This study aimed to get knowledge of the younger stroke patient's viewpoint and to describe how young stroke patients experience the rehabilitation process. The purpose was also to develop hypotheses about the relationship between young stroke patients and the rehabilitation process.
Thematised in-depth interviews were performed with two women and three men who suffered from stroke (37 - 54 years). The analysis used was the Grounded Theory method of constant comparison.
The analyses resulted in the core category 'Frustration' which was derived from the categories labelled 'The paralysed everyday' and 'Outside and invisible'. 'The paralysed everyday' category involved different aspects of everyday life after a stroke. Because of their fatigue they were unable to work and their family and social life were negatively affected. They found it difficult to engage in daily life activities and felt indifferent. The three women expressed frustration over the demands they experienced as being mothers and housekeepers, whereas the two men emphasised economic responsibility of the family as problematic. The category 'Outside and invisible' describes the lack of participation the informants experienced regarding the rehabilitation process. The informants felt they lacked information and age-adapted interventions. Their needs were not provided for and they felt distant from the other patients. Their remaining symptoms were probably on a cognitive basis and therefore invisible. This was a source of frustration.
The hypotheses generated indicated that young stroke patients are frustrated and invisible due to the fact that the rehabilitation setting does not acknowledge the different needs of young stroke patients compared with older patients.
本研究旨在了解年轻中风患者的观点，并描述年轻中风患者如何体验康复过程。其目的还在于提出有关年轻中风患者与康复过程之间关系的假设。
对两名女性和三名男性中风患者（年龄在37至54岁之间）进行了主题深入访谈。所采用的分析方法是持续比较的扎根理论方法。
分析得出核心类别“挫折感”，它源自“瘫痪的日常生活”和“外界与无形”这两个类别。“瘫痪的日常生活”类别涉及中风后日常生活的不同方面。由于疲劳，他们无法工作，家庭和社会生活受到负面影响。他们发现难以参与日常生活活动，感到冷漠。三名女性对作为母亲和家庭主妇所面临的要求表示沮丧，而两名男性则强调家庭的经济责任是个问题。“外界与无形”类别描述了受访者在康复过程中缺乏参与感。受访者感到他们缺乏信息以及适合其年龄的干预措施。他们的需求未得到满足，并且觉得与其他患者有距离感。他们剩余的症状可能基于认知层面，因此难以察觉。这是挫折感的一个来源。
所产生的假设表明，由于康复环境未认识到年轻中风患者与老年患者的不同需求，年轻中风患者感到沮丧且不被关注。
