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梅尼埃病患者报告的积极体验:一项定量研究。

Positive experiences reported by people with Ménière's disorder: a quantitative study.

作者信息

Stephens Dafydd, Pyykko Ilmari, Kentala Erna, Levo Hilla

机构信息

Department of Neurology, Ophthalmology & Audiological Medicine, School of Medicine, Cardiff University, Cardiff, Wales, UK.

出版信息

Acta Otolaryngol. 2010 Sep;130(9):1013-8. doi: 10.3109/00016481003629341.

Abstract

CONCLUSIONS

Eight aspects of self-reported positive experience in Ménière's disorder were identified, of which 'Perspectives on one's disease' can predict the impact of the condition.

OBJECTIVES

To determine the types of positive experiences related to attitudes and expectations and their relationship to the impact of Ménière's disorder on the individuals' lives.

METHODS

A postal survey of the members of the Finnish Ménière's Association including a structured questionnaire on positive experiences that have been reported by people with Ménière's disorder.

RESULTS

Eight positive factors were derived, explaining 59% of the total variance. The main factors were 'Personal development', 'Patient Association', 'Perspective on one's disease', Acceptance of limitations', 'Beneficial life-effects' and 'Use condition to self-advantage'. Of these only 'Perspective on one's disease' related significantly to measures of the impact of the condition.

摘要

结论

确定了梅尼埃病自我报告的积极体验的八个方面,其中“对自身疾病的看法”可预测病情的影响。

目的

确定与态度和期望相关的积极体验类型及其与梅尼埃病对个体生活影响的关系。

方法

对芬兰梅尼埃病协会成员进行邮寄调查,其中包括一份关于梅尼埃病患者报告的积极体验的结构化问卷。

结果

得出八个积极因素,解释了总方差的59%。主要因素为“个人发展”“患者协会”“对自身疾病的看法”“接受局限性”“有益的生活影响”和“利用病情实现自我优势”。其中只有“对自身疾病的看法”与病情影响的测量指标显著相关。

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