Ishikawa Naoko, Pridmore Pat, Carr-Hill Roy, Chaimuangdee Kreangkrai
Bureau of International Cooperation, International Medical Center of Japan, Tokyo, Japan.
AIDS Care. 2010 Mar;22(3):308-13. doi: 10.1080/09540120903193732.
This study examines the psychosocial needs of the children affected by AIDS. Eight primary school children aged 10-13 years who lost parents to AIDS or whose parents were living with HIV were closely followed for a period of one year and qualitative data on the psychosocial challenges they faced were collected using semi-structured interviews, observation, drawings and diaries. Data were also collected from their caregivers and classroom teachers using semi-structured interviews, as well as data from their classmates using a self-completion questionnaire. The findings strongly suggested that adults were creating a "wall of silence" around children affected by AIDS by hiding the parents' HIV status from them and avoid talking to them about HIV and AIDS. The silence was intended to protect the children from sadness, embarrassment, bullying and discrimination. In reality, however, the silence was found to have isolated them and increased their psychosocial vulnerability by blocking open communication with family members, peers and teachers, and left them to cope with their problems on their own. It is argued that to support the psychosocial health of these children, it is necessary for the adults to recognise the negative impact of silence and for the families and the school to be involved in a process of participatory learning and action to find culturally appropriate ways to break down the wall of silence, and promote more open communication.
本研究调查了受艾滋病影响儿童的心理社会需求。对8名年龄在10至13岁之间、因艾滋病失去父母或父母感染艾滋病毒的小学生进行了为期一年的密切跟踪,并通过半结构化访谈、观察、绘画和日记收集了他们所面临的心理社会挑战的定性数据。还通过半结构化访谈从他们的照顾者和任课教师那里收集了数据,以及通过自填问卷从他们的同学那里收集了数据。研究结果强烈表明,成年人通过向受艾滋病影响的儿童隐瞒其父母的艾滋病毒感染状况,并避免与他们谈论艾滋病毒和艾滋病,在这些儿童周围筑起了一道“沉默之墙”。这种沉默旨在保护儿童免受悲伤、尴尬、欺凌和歧视。然而,实际上,这种沉默被发现使他们变得孤立,通过阻碍与家庭成员、同龄人及教师的开放交流增加了他们的心理社会脆弱性,让他们独自应对自己的问题。有人认为,为了支持这些儿童的心理社会健康,成年人有必要认识到沉默的负面影响,家庭和学校需要参与一个参与式学习和行动的过程,以找到符合文化习惯的方法来打破沉默之墙,促进更开放的交流。