Vanderbilt University School of Nursing, 461 21st Avenue South, Nashville, TN 37240, USA.
Support Care Cancer. 2011 May;19(5):631-7. doi: 10.1007/s00520-010-0870-5.
The primary purpose of this study was to cross-sectionally examine breast cancer treatment-related lymphedema self-care education, self-care practices, and perceived self-care barriers, burdens, and benefits. We also explored the associations among self-care education, practices, symptoms, and quality of life (QOL) in breast cancer survivors with known lymphedema.
A cross-sectional design was used to obtain data about lymphedema self-care education, self-care practices, perceived self-care barriers, burdens, and benefits, symptoms, and QOL. Frequency distributions and Spearman rank-order correlations were used to analyze quantitative data. Thematic qualitative analysis of perceived barriers, benefits, and burdens of self-care was also undertaken.
Surveys were completed and returned by 51 of 58 eligible individuals. Of the 51 responding, 48 had received some self-care education, but three did not think it was adequate. Wearing a compression garment was the most frequently cited self-care activity, and 18 of the 51 required help with self-care. Thirty-three percent, 17/51, spent 15 minutes or less per day on self-care. Multiple barriers to self-care were identified. Those with more symptoms spent more time on self-care activities and had a poorer QOL.
Opportunities exist to improve lymphedema self-care education. Breast cancer survivors with lymphedema experience symptoms beyond that of simple swelling of the affected limb. Self-care is burdensome. Barriers to providing lymphedema self-care exist and may vary across patients. A multidisciplinary approach to lymphedema management, including self-care education and monitoring, is likely needed to improve QOL in this population.
本研究的主要目的是横截面上检查乳腺癌治疗相关的淋巴水肿自我护理教育，自我护理实践，以及感知自我护理障碍，负担和益处。我们还探讨了在已知患有淋巴水肿的乳腺癌幸存者中，自我护理教育，实践，症状和生活质量（QOL）之间的关联。
采用横断面设计获取有关淋巴水肿自我护理教育，自我护理实践，感知自我护理障碍，负担和益处，症状和 QOL 的数据。使用频率分布和 Spearman 等级相关分析对定量数据进行分析。还对自我护理的感知障碍，益处和负担进行了主题定性分析。
对 58 名合格的个人进行了调查，并收回了 51 份调查问卷。在 51 名应答者中，有 48 人接受了一些自我护理教育，但有 3 人认为不够充分。穿着压缩服是最常被引用的自我护理活动，而 51 人中的 18 人需要他人帮助进行自我护理。有 33％（51 人中有 17 人）每天花在自我护理上的时间少于 15 分钟。确定了多种自我护理障碍。那些症状更多的人花费更多的时间进行自我护理活动，并且生活质量较差。
有机会改善淋巴水肿自我护理教育。患有淋巴水肿的乳腺癌幸存者的症状不仅限于受影响肢体的肿胀。自我护理负担沉重。存在提供淋巴水肿自我护理的障碍，并且可能因患者而异。可能需要多学科方法来管理淋巴水肿，包括自我护理教育和监测，以改善该人群的生活质量。
