University of North Carolina at Charlotte, NC, USA.
Am J Orthopsychiatry. 2010 Jan;80(1):115-23. doi: 10.1111/j.1939-0025.2010.01014.x.
The importance of helping families of children with severe emotional disturbances (SED) connect with informal or natural supports-that is, individuals who are part of their ongoing communities and daily lives-has been widely recognized. Utilization of informal supports has thus become a core element within systems of care (SOCs) designed to improve services for children with SED and their families. However, research demonstrates that implementation of wraparound, the key practice approach within SOCs, often does not include involvement of informal supports. Using a measure of social connectedness (SC), developed to augment the instruments used for the SOC national evaluation, this study assessed parents' and caregivers' views of their connections to and support from their community within a SOC. Overall, parents and caregivers reported low levels of support across multiple sources as well as a desire for more support. Greater levels of perceived support related positively to caregiver strain, types of and satisfaction with services received, and views of their communities as supportive and safe. Greater attention to families' contexts and the identification of effective ways to connect families to their communities are recommended.
帮助有严重情绪障碍（SED）儿童的家庭与非正式或自然支持建立联系的重要性已得到广泛认可——即与他们所在的社区和日常生活有联系的个人。因此，利用非正式支持已成为旨在改善有 SED 儿童及其家庭服务的护理系统（SOCs）的核心要素。然而，研究表明，SOC 中关键的实践方法——全面服务模式的实施通常不包括非正式支持的参与。本研究使用一种社会联系（SC）的衡量标准，该标准是为了增强 SOC 国家评估中使用的工具而开发的，评估了父母和照顾者对其在 SOC 中与社区的联系和支持的看法。总体而言，父母和照顾者报告了来自多个来源的支持程度较低，并且希望获得更多的支持。感知到的支持程度越高，与照顾者压力、接受的服务类型和满意度以及对社区的支持和安全看法呈正相关。建议更加关注家庭的背景，并确定将家庭与社区联系起来的有效方法。
