Burke Redmond P, Rossi Anthony F, Wilner Bryan R, Hannan Robert L, Zabinsky Jennifer A, White Jeffrey A
Department of Cardiovascular Surgery, Miami Children's Hospital, Congenital Heart Institute, Florida, USA.
Cardiol Young. 2010 Oct;20(5):477-84. doi: 10.1017/S1047951110000363. Epub 2010 May 11.
The purpose of this study was to evaluate the utilisation of a web-based multimedia patient-accessible electronic health record, for patients with congenital cardiac disease.
This was a prospective analysis of patients undergoing congenital cardiac surgery at a single institution from 1 September, 2006 to 1 February, 2009. After meetings with hospital administration, physicians, nurses, and patients, we configured a subset of the cardiac program's web-based clinical electronic health record for patient and family access. The Electronic Health Record continuously measured frequency and time of logins, logins during and between hospitalisations, and page views by type (imaging versus textual data).
Of the first 270 patients offered access to the system, 252 became users (93% adoption rate). System uptime was 99.9%, and no security breaches were reported. Users accessed the system more often while the patients were in hospital (67% of total logins) than after discharge (33% of total logins). The maximum number of logins by a family was 440, and the minimum was 1. The average number of logins per family was 25. Imaging data were viewed significantly more frequently than textual data (p 0.001). A total of 12 patients died during the study period and 11 members of their families continued to access their Electronic Health Records after the date of death.
A web-based Patient Accessible Electronic Health Record was designed for patients with congenital cardiac disease. The adoption rate was high, and utilisation patterns suggest that the Electronic Health Record could become a useful tool for health information exchange.
本研究旨在评估基于网络的多媒体患者可访问电子健康记录在先天性心脏病患者中的使用情况。
这是一项对2006年9月1日至2009年2月1日在单一机构接受先天性心脏手术患者的前瞻性分析。在与医院管理部门、医生、护士和患者会面后，我们配置了心脏项目基于网络的临床电子健康记录的一个子集，供患者及其家属访问。电子健康记录持续测量登录频率和时间、住院期间及住院间隔期间的登录情况以及按类型（影像数据与文本数据）统计的页面浏览量。
在前270名获得系统访问权限的患者中，252人成为用户（采用率93%）。系统正常运行时间为99.9%，未报告安全漏洞。患者住院期间用户访问系统的频率（占总登录次数的67%）高于出院后（占总登录次数的33%）。一个家庭的最大登录次数为440次，最小为1次。每个家庭的平均登录次数为25次。影像数据的浏览频率显著高于文本数据（p<0.001）。在研究期间共有12名患者死亡，其中11名患者家属在患者死亡日期后仍继续访问他们的电子健康记录。
为先天性心脏病患者设计了基于网络的患者可访问电子健康记录。采用率很高，使用模式表明电子健康记录可能成为健康信息交换的有用工具。
