Department of Pediatric Surgery, Vanderbilt University Medical Center (VUMC), Nashville, TN, USA.
Department of Biomedical Informatics, VUMC, Nashville, TN, USA.
J Am Med Inform Assoc. 2018 Feb 1;25(2):167-174. doi: 10.1093/jamia/ocx067.
The Vanderbilt Children's Hospital launched an innovative Technology-Based Patient and Family Engagement Consult Service in 2014. This paper describes our initial experience with this service, characterizes health-related needs of families of hospitalized children, and details the technologies recommended to promote engagement and meet needs.
We retrospectively reviewed consult service documentation for patient characteristics, health-related needs, and consultation team recommendations. Needs were categorized using a consumer health needs taxonomy. Recommendations were classified by technology type.
Twenty-two consultations were conducted with families of patients ranging in age from newborn to 15 years, most with new diagnoses or chronic illnesses. The consultation team identified 99 health-related needs (4.5 per consultation) and made 166 recommendations (7.5 per consultation, 1.7 per need). Need categories included 38 informational needs, 26 medical needs, 23 logistical needs, and 12 social needs. The most common recommendations were websites (50, 30%) and mobile applications (30, 18%). The most frequent recommendations by need category were websites for informational needs (39, 50%), mobile applications for medical needs (15, 40%), patient portals for logistical needs (12, 44%), and disease-specific support groups for social needs (19, 56%).
Families of hospitalized pediatric patients have a variety of health-related needs, many of which could be addressed by technology recommendations from an engagement consult service.
This service is the first of its kind, offering a potentially generalizable and scalable approach to assessing health-related needs, meeting them with technologies, and promoting patient and family engagement in the inpatient setting.
范德比尔特儿童医院于 2014 年推出了一项创新的基于技术的患者和家庭参与咨询服务。本文描述了我们在该服务方面的初步经验，描述了住院儿童家庭的健康相关需求，并详细介绍了推荐用于促进参与和满足需求的技术。
我们回顾性地审查了咨询服务文档，以了解患者特征、与健康相关的需求以及咨询团队的建议。使用消费者健康需求分类法对需求进行分类。根据技术类型对建议进行分类。
共对年龄在新生儿至 15 岁的 22 名患者的家庭进行了咨询，其中大多数为新诊断或慢性病患者。咨询团队确定了 99 项与健康相关的需求（每次咨询 4.5 项），并提出了 166 项建议（每次咨询 7.5 项，每项需求 1.7 项）。需求类别包括 38 项信息需求、26 项医疗需求、23 项后勤需求和 12 项社会需求。最常见的建议是网站（50 个，30%）和移动应用程序（30 个，18%）。按需求类别最常见的建议是信息需求的网站（39 个，50%）、医疗需求的移动应用程序（15 个，40%）、后勤需求的患者门户（12 个，44%）和社会需求的特定疾病支持小组（19 个，56%）。
住院儿科患者的家庭有多种健康相关需求，其中许多需求可以通过参与咨询服务的技术建议来解决。
该服务是同类服务中的首例，提供了一种评估健康相关需求、通过技术满足需求以及促进患者和家庭在住院环境中参与的潜在通用和可扩展方法。
